Had appointment : So I saw my GP today... - Haemochromatosis ...

Haemochromatosis Society UK

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Had appointment

MrsO2510 profile image
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So I saw my GP today.

He said my results (posted in previous email) show I am no longer anaemic as it's now 12.7 after my iron infusion a few weeks ago. I asked if 12.7 was high enough considering I am have extremely heavy periods. But agreed we would just 'monitor' he said B12 didn't need injections either.

I had to really push for an explanation of other results and now he's testing for myeloma on the back of those results. Not a great day 😞

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MrsO2510
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Madlegs1 profile image
Madlegs1

I would consider 12.7 marginal given your circumstances and history. You can take the oral B12 if you think it helps.

Iron is measured in 3 different ways. Hgb ( your 12.7) is the accessible iron for making red cells. Ferritin ( shouldbe around 70- 100) is stored iron- too much is dumped into organs which may be damaged- eg Hemocromatosis.

And then there is another iron measurement - usually about 20- 50 - which I don't understand.

Hopefully someone with more knowledge will come in here!

That IDI site has a lot of good info on it.

Cheers.

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