I suffer from a number of autoimmune conditions all with links to CD. For many years I have suffered with what I was diagnosed to be IBS and have been misdiagnosed with a number of things due to the fact that I have been seronegative in blood tests. Now all of a sudden those tests are showing up strongly positive results in a number of areas.
My doctors who had already diagnosed me anyway on clinical history then told me to be GF due to an obvious intolerance and all agreed that it was not in my interest to go back on a Gluten diet just to find out if I have Celiac for sure when it was obvious from cutting it out how much better I had become. They all also agreed that it was really common to see "intolerance" in so many of their patients with that particular autoimmune disease.
I have to say I get a little irritated with the fact that people who get diagnosed with Celiac can get prescriptions to help pay for the really expensive GF food but people who are Gluten "Sensitive" because either they can't eat the gluten to get a test or the test is seronegative (you can test negative and still have Celiac) can't get a prescription.
Why are GS people any less deserving of prescriptions if their doctors say they should not be eating gluten? You also can't join Celiac UK as far as I am aware unless you are "diagnosed"!
I agree that people can't just profess to have a sensitivity and demand a prescription but surely if doctors are telling you its in your medical interest these two areas should be merged for the patients best interest?
So as asked above what really is the difference between Celiac and Gluten sensitivity or allergy? Especially if you already have antibodies raging in your system!
Am I alone in feeling a bit hard done by?