Would Celiac show in typical bloodwork? - Gluten Free Guerr...

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Would Celiac show in typical bloodwork?

Max1990
Max1990

About 4 months ago I started having constant palpitations and some tingling in my hands and all over my body. Went to the doctors and they did some blood tests and it showed I had low b12 and iron levels. I have been taking supplements and was retested last week and they left me a voicemail saying to start taking an iron supplement as well as my b12. I have been unable to get ahold of my doctor but will try again on Monday. I have been google and some online reading is pointing to Celiac. Would Celiac show in a standard range of blood tests? or do they need to specifically look for it?

12 Replies
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Unfortunately no, you need a specific test for Celiac.

cureceliacdisease.org/scree...

Max1990
Max1990 in reply to Rhyothemis

Thanks for the quick reply. Not sure if thats a good or a bad thing. When i managed to get a call with the doctor i will 100% be requesting a test. Thanks again

CATRYNA49
CATRYNA49 in reply to Max1990

My blood work, 10 years ago, showed me to be Celiac. I did not have any further tests, but went gluten free immediately. When my health improved, we knew we were on the right track. When I diagnosed my long standing (45+ years) problem with Dermatitis Herpetiformis, that was the clincher. I went grain free after that. I was also diagnosed with IBS and Hashimotos.

You will only have had coeliac showing in your blood work if your doctor suspected/requested that as part of your test. In terms of giving up gluten, standard advice is to wait until gut biopsy - if you give up gluten before biospy the biopsy result may be skewed.

My blood work 10 years ago was very extensive, and checked everything in the pico grams, so it was conclusive. Since I have evaluated my situation to my satisfaction, with the inclusion of DH, I didn't feel it necessary to get an endoscopy to already prove what I knew to be true. Unnecessary, medical procedures are not an option for me.

Get what you mean. It's not a nice procedure and if the diet works for you, why go there.

Exactly. I'm all about not getting involved in unnecessary procedures. If something is close enough to 100% conclusive, in my mind, then off I go. Thank you, BTW, many people decide to diss others for not going whole hog with "doctor's orders."

Hello I do not know your b12 level but I would request test for pernicious anemia

a lot of G.Ps are not up to speed with this condition good luck

You do need a specific Coeliac test, but it is not terribly reliable, unless you have quite significant damage. In the earlier stages it misses a lot of people. Have it done, of course, but don't assume you are ok if it is negative. Look at symptoms, history, family history and consider an elimination and (careful, slow) reintroduction. Low iron is often one of the first to show and it does seem that you have an absorption issue. Best wishes

I had something similar to this that started just before COVID-19 lockdown. I had apparently caught from my daughter and son-in law who were living in a COVID-19 hotspot. We all developed "Long COVID" , where the symptoms are mild but can go on for months and can include sensory hypersensitivity so that you get various paraesthesias, similar to people who have electromagnetic hypersensitivity (EHS) to the microwave radiation from mobile and cordless phones.

These symptoms, which also can include chronic fatigue can go on for months after the virus has left your body so you will possibly now test negative for COVID even though you still have many of the symptoms.

Can I ask if you have recently acquired a WiFi or cordless phone system, where most of the base stations run 24/7? If so, try switch them all off for at least three days. If the symptoms disappear you may be EHS, for which there is no known cure and may have to reduce your exposure to microwaves for the rest of your life. As far as its effect on your lifestyle is concerned, its every bit as bad as being a coeliac, but there are ways of managing both.

Benjamin123
Benjamin123 in reply to Mathri

How can EHS be managed if walls do not stop waves and we live in built-up urban environments? Fine to switch off base station, but if your nextdoor neighbour is pumping out wifi/EHS, how can that be managed? I'm not disputing any theories, but seems almost impossible to limit exposure.

If you want to get evidence that you have celiac, you have them test for gluten antibodies in the blood, not your standard blood test. The test is not totally definitive however, since you could have non celiac gluten sensitivity and those antibodies would be present. I also had an endoscopy in which they take a small sample from the area where the end of the stomach and small intestine connect. ( That is the closest they can get inside the small intestine.) Unfortunately, it is possible that even though they take the sample, the villous atrophy may not have occurred right in that spot so it can also be inconclusive .

Also, I had a genetic test which showed that of the two genes associated with celiac disease, I have one of them. But there are people with those genes who don't have celiac.

So you must also consider your symptoms, especially anemia, weight loss, B 12 deficiency, how you react after eating gluten, and others. I have never seen palpitations or tingling in any kind of list of celiac symptoms nor have I had them personally. But lack of iron and B12 sound like they might be involved in those problems. They are involved in many important bodily functions. Good luck.

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