New to all this: I’ve jumped over from... - Gluten Free Guerr...

Gluten Free Guerrillas

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New to all this

Sybilw profile image
10 Replies

I’ve jumped over from the running side to look for advice and encouragement as that is what I get over there. My granddaughter (aged 2) had just been tested for coeliac but is almost certainly gluten intolerant. I KNOW we’ll manage as her sisters were egg and dairy free and that frightened us at first (what will they eat, what can I bake?). Of course the current run on flour etc doesn’t help but I know you all will have advice. I’ve still managed a run today in the circumstances and I’m sure I’ll manage to feed her tonight too!! - I’m a hard working granny child carer! 😊 Thanks in advance.

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Sybilw profile image
Sybilw
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10 Replies

Sybilw, I'm surrounded by coeliacs in my household Mrs Wife and th eldest daughter are both confirmed coeliacs. Go stock up on doves gluten free flour, normally Available in all supermarkets or health store.

Sybilw profile image
Sybilw in reply to

Thank you. I notice the word ‘normally’!! I’m sure we’ll be fine but my daughter thought she’d escaped allergies with daughter #3! I expect that for a while it’s just a matter of reading the ingredient lists - again - oldest granddaughter used that against us as a toddler. If she didn’t fancy something she pretended to read the label and tell us it was no good for her as it contained milk!! Thanks again for the reassurance.

Hi Sybilw

There are many aspects to gluten free living, from the foods your grandaughter can/can't have, cross-contamination risks, products to use/not use (including shampoos, etc), eating out, repairing health/damage, making your kitchen safe and clean of cross contamination risk.

I think one of the best leads for this will be your grandaughter's primary care giver who should be working with their doctor/dietician on the advice. Ask for copies of all guidelines, etc. Also contact Coeliac UK for some basic advice but do be careful and aware that CUK food guideance can be very hit and miss.

Sybilw profile image
Sybilw in reply to

Thank you. We’re hoping it’s an allergy or intolerance rather than coeliac but she’s been tested and we’re waiting on the result. 🤞🏻 I wasn’t aware of all the obstacles ahead though so thanks for the warning.

FFNick profile image
FFNick

Are you aware she might grow out of it.

Sybilw profile image
Sybilw in reply to FFNick

Yes 🤞🏻 Her sisters grew out of their egg and dairy allergies but still chose to eat neither. Thanks for reminding me of that though - you don’t always think positive at times like this.

in reply to FFNick

Not out of coeliac. You need to be clear on that.

Sybilw profile image
Sybilw in reply to

YEs thank you. I was meaning if it turns out it’s an intolerance and happily it is for her.

CATRYNA49 profile image
CATRYNA49

My son started grains at 15 months and showed an intolerance to wheat. He finally was able to tolerate it when he was 2 1/2 years old. All of my children were sensitive to strawberries, one until she was 5 years old. Stop anything with wheat for 6 months and then introduce it and see what happens. BTW, I was diagnosed with Celiac 10 years ago, but have probably been since my late teens. I also have a granddaughter who was diagnosed with Celiac at age 7. sometimes, it happens.

Sybilw profile image
Sybilw in reply to CATRYNA49

Since she was only diagnosed the week before lockdown I’ve not had to deal with her recently 😢 but she’s doing well just now. Thank you for that info.

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