Potential coeliac-related lactose int... - Gluten Free Guerr...

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Potential coeliac-related lactose intolerance..?


Hey guys, it's my first post here. I was diagnosed with coeliac disease about a year ago, but recently I have been having stomach cramps and bloating after every meal I eat. I am very careful with the preparation of my food and follow a strict gluten-free diet.

I have heard of the link between coeliac and lactose intolerance, and thought this might be it. However I have eaten some lower-lactose meals and found little difference. Does anyone have any suggestions on what this might be?


6 Replies

I'm the same so would love to know too please

Lots of people with coeliacs also have problems with other known inflammatory foods, especially until their stomach lining heals properly, which can take yonks. Also the pre processed gf foods you can buy at the supermarkets, often contain things that can irritate your stomach too.

So maybe if you have those, cut those out & just make your own using gf flour first, if that doesn't do the trick cut out all dairy - could be the protein element in the dairy ie caseein that you have a problem with, if that doesn't work have a look at the website paleomum by Sarah Ballyntyne, that has lots of info on there about inflammatory foods, she also does a fab book & there is another couple of websites run by Micki Rose called Purehealth & Trulyglutenfree, loads of info on there & then you can decide if you need to cut out those inflammatory foods for a while. Hard work, but it will be worth it. Good luck.

I cannot tolerate lactose and I also have major problems with soya so you could check those first but as in the previous post if you have no luck check the Paleo diet. Good luck.

I'm the same as you basically however I've found you need to cut out all lactose completely. and most gluten free products unfortunately still have lactose in you have to be very careful and read all the small print. Also stay away from all chocolate even the dark stuff. You can stay on dairy foods though if you buy lactose free dairy products if they sell them near you cows milk lactose free cream and yogurt and cheese are available in most supermarkets these days made buy ARLA.

Hi Berty_bots,

I too have a problem with milk. Although I am not lactose intolerant. It is the protein in the milk that does it. But it is only with raw milk, pasteurised or not. However I find that if the milk has been boiled it is OK. The boiling alters the protein structure, as does fermenting into yoghurt or cheese. I am also alright with cream. I gather that the main protein in milk, casein is very similar in structure to gluten.

If I do have raw milk, even a very small amount such as you would get in a cup of tea, then the reaction is dramatic and very quick, within ten minutes. It is like drinking a gallon of syrup of figs and is very painful and long lasting. I will be completely out of it for the rest off the day.

I drink black tea or espresso these days!

Some sources suggest newly diagnosed Coeliacs avoid dairy for about 6 months until the gut is reasonably recovered. Unfortunately I came across this information too late to benefit from it. I found that I became lactose intolerant about 12 months after being diagnosed with CD. Now I find I can have small amounts of hard cheese like mature cheddar. I found some advice that states when cheese says nil carbohydrate sugars on the nutrition information it means there is virtually no lactose remaining. Also, yogurt that is fermented for 24 hours or more eliminates virtually all the lactose, so I eat that as well. With time it is said many Coeliacs may recover from lactose intolerance, so may be worth trying to reintroduce it at a later stage.

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