Have celiac disease : On a strict... - Gluten Free Guerr...

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Have celiac disease

Birdmeister666
Birdmeister666
13 Replies

On a strict gluten free diet and my villi came back, no acid reflux or gas for awhile.

Look at food labels and have a huge list of gluten free products

Ask for gluten free menue at restaurants

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corby39

i find a lot of restaurants say can do gluten free but have no idea about cross contamination.and the results afterwards speak for themselves.

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Birdmeister666

I'm not sensitive to cross contamination however if I ate every day in a restaurant that served cross contaminated food I'm sure I would have a negative reaction.

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Birdmeister666

I am not sensitive to cross contamination. If I ate in restaurants every day that the food was compromised I am sure my symptoms would appear

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joanne33

Well done! How long did it take and how do you know your villi are back? Assume you have had another gastroscopy but my GP has refused that. Not ready for it yet anyway as I was only diagnosed in August with quite severe damage, but I assumed I would be followed up with a repeat, but my GP says that doesn't happen on NHS- ?

I do already feel much better but assume that is because I'm now taking vitamins absorbed in my mouth rather than via intestines.

Would be interested to know how anyone else is followed up

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Birdmeister666

Doctor did my lower GI a year earlier because he sampled a found blood in my stool. Found blood from a hemmroid or polyp. Zapped the polyp and found no sign of celiac disease but said it would come back if I ate foods with gluten.

Ate some hard Christmas candy yesterday and had a moderate celiac attach.

Obviously the candy contained gluten as I was once warned by my dietitian to watch out for hard candies.

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Rosie11011
Rosie11011
in reply to joanne33

I never got a follow up gastroscopy, as like you, they're not done on the NHS. I wish I could have had one as I have always felt I have never got back to normal, even after 8years. I still have issues with dairy, and have to greatly limit how much I have in a day. I also take multivitamins, as, even though I feel a eat a healthy diet, as I don't know how much I absorb I feel it's a 'belt and braces' safeguard.

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Birdmeister666

Get it done ASAP plus blood work to determine you B12 level

The lectos center are close to the gluten centers as l am simplifying things for you so I'm not surprised

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joanne33
joanne33
in reply to Rosie11011

Thanks Rosie. It would have been nice to get a little reassurance that we were getting the diet right!

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Birdmeister666

It's a challenge for my wife and me to eat out. I have the celiac she is lactose intolerant. She can't eat dairy or legumes as it effects her lungs causing her asthma to get worse. We do manage but occasionally make mistakes.

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Mike52

Sad to say that today a lot of cafes etc are putting up a sign saying gluten free without any idea as to what's involved. I had a gf toasty a few days ago at a cafe it was ok but the ham showed signs of been breaded. Would love to eat out a bit more but concerns over how things are being done puts me off. It needs a much better standard of training for staff

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corby39
corby39
in reply to Mike52

they should take a leaf out of Americas book the only place I have been to that I felt comfortable eating out.

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Venetia

some restaurants have coeliac uk approval. I always fine Carluccios good and Ask so usually stick to those two.

I find eating at friends a nightmare, they often think they know but don't. I find myself becoming more unsociable as a result.Boring to repeat oneself, not very pleasurable to be limited while others enjoying food that one could eat if it was prepared gluten free.

I do well when I eat naturally gluten free foods in as natural a state as possible, boring yes but I feel great

( when I am tempted by "treats" sometimes ok and sometimes not).

New Year Resolution, natural gluten free eating,

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Birdmeister666

Yes it is suff to be invited to dinner, however we solved this by eating out with friends instead. I web search menus of local restuarants and look at their gluten free menue choices so I know what to expect. Ruby Tuesday,

Red Ronin has a few good choices.

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