Friends are gold
Barbie52 in British Lung Foundation4 years agoPOPULAR
I live in a remote areas of the Blue Mountains in Sydney
I have been diagnosed with CVID and Bronchiecstasis
Today I was advised that I need. ...
Husband was diagnosis with ITP and they want to do Splenectomy?
jillpark in ITP Support Association5 years ago
They have just done a couple things to help him (iv antibiotic treatment, lyphectomy and IV globulin) I am very confused and not sure if the...
Has anyone been treated with IVIg infusions for suspected autoimmune induced CA?
neta in Ataxia UK6 years ago
IV immunoglobulin Therapy
Twinkle_12 in LUPUS UK2 years ago
Does anyone have any experience of IV Immunoglobulin Therapy? I keep getting infections that I can't get over and there has been some talk ...
newbe in Scleroderma & Raynaud's UK (SRUK)2 years ago
I have been on mycophenolate for about 4 weeks and just noticed on the advisory note that you are supposed to avoid sunlight. Does anyone kn...
nancarolyn in LUPUS UK9 months agoPOPULAR
Wondering if anyone has that. I dismissed it for awhile.I go into denial ,when a new diagnosis problem from doc and then look into it. Anoth...
Vitamin D - More Important than you Thought!
APsnotFab in Sticky Blood-Hughes Syndrome Support5 years ago
This is a PubMed case report so unable to post a link. For those not able to get PubMed here are the basic details and if you want the two ...
IVIG & Clinical Trial with B + R -- Idelalisib (GS-1101) OR CAL 101 Study (III)
MartyR in CLL Support Association5 years ago
So yesterday - Monday 29th - 11 days after my first chemo B + R - I had an infusion of IVIG to help my deficient immune system. I did not ap...
Chickpox and Pred
Hidden in Asthma UK community forum11 years ago
I have been on long term high dose pred for some years now and on sunday I came into contact with a lovely little boy who the following day ...
d011y in CLL Support Association3 years ago
Following six rounds of fcr ending in february this year i have been plagued with one chest infection after another and a constant bad cough...
Bsteph in Thyroid UK2 years ago
Hi could someone tell me the best way to privately tests cortisol binding globulin levels please? I want blood tests done (not saliva) that ...
Morganslone in Sticky Blood-Hughes Syndrome Support2 years ago
Hi again from the great and sadly specialist empty state of Tennessee. I have my first appointment with a rheumatologist this coming Monday...
Depression after Transplant
stephanie904 in Kidney Transplanta year agoPOPULAR
1st time post.
I just joined.
My question is if any of you have depression issues after transplant?
Or if you already had depression, did it w...
CLL bone marrow
Hidden in CLL Support Associationa year agoPOPULAR
how many folks here with CLL have had a bone marrow biopsie?
Start a Community