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Glioblastoma Support

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I have a Brian tumour had the surgery now going to treatment radio chemo etc… Been told exercise is good Any advice on how much? Or little? any tips on...

I have a Brian tumour had the surgery now going to treatment radio chemo etc… ...

Ppmoorman65

•17 days ago

2 Replies

Looking for additional treatments for GBM 4 husband

Dear all - It’s been the hardest journey I’ve been on in my life. My partner and love of my life was diagnosed with GBM4 on November 30, 2023. We live in...

Dear all - It’s been the hardest journey I’ve been on in my life. My partner and...

KatyaBoston

•17 days ago

2 Replies

Tumour is stable but having seizures

Hello everyone. I’m wondering if anyone has any advice please? My Dad is now 75 and was diagnosed with a GBM nearly three years ago. He’s has done amazingly...

Hello everyone. I’m wondering if anyone has any advice please? My Dad is now 75 ...

Cranesbill

•1 month ago

1 Reply

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Is there a link between the use of Wi-Fi to the increased growth in people of all age groups being diagnosed with a brain tumour?

Since the start of my involvement in the co-creation of The Brain Tumour Charity’s (TBTC) new strategy. I have spent a lot of time pondering this question...

Since the start of my involvement in the co-creation of The Brain Tumour Charity...

Tansi75

•2 months ago

4 Replies

Sign our open letter

Some decisions are tough, but a National Brain Tumour Strategy is a No Brainer. We're calling for: 🔬Pioneering research into brain tumours. 🏥Access to...

Some decisions are tough, but a National Brain Tumour Strategy is a No Brainer. ...

Zhaleh_TBTC

Administrator•2 months ago

2 Replies

My Tumour is shrinking

I am at the end of chemo cycle. In August my tumour was 1cm after I had the MRI. So 80% removed from right side of my brain. I have gone to 1cm to 1.5cm. In...

I am at the end of chemo cycle. In August my tumour was 1cm after I had the MRI...

Denni60

•2 months ago

6 Replies

URGENT! Has anyone had Lomustine and Sativex together?

My brother was diagnosed with GBM in May of last year. He had a vigil craniotomy in May 2023. He then had chemotherapy and radiation therapy together. He was...

My brother was diagnosed with GBM in May of last year. He had a vigil craniotomy...

Hermanito

•3 months ago

2 Replies

GBM and Keto Diet - Urgent

My brother was diagnosed with GBM (grade IV) in May 2023. I wonder, please, if any of you know about the Keto Diet and how effective it might be in treating...

My brother was diagnosed with GBM (grade IV) in May 2023. I wonder, please, if ...

Hermanito

•4 months ago

8 Replies

Support Team Christmas opening times

We know that this time of year can be difficult for many in the brain tumour community, which is why our Support Services will still be opening at reduced...

We know that this time of year can be difficult for many in the brain tumour com...

Zhaleh_TBTC

Administrator•4 months ago

Be the first to reply

hi, my husband had a surgery last Saturday and my whole world had crashed. GBM grade 4. I’m lost, and scared. I have 3 kids. 16, 13, 13

I’m looking for emotional support and chat. I live in California. My whole world has crashed in a second. What do I do?

I’m looking for emotional support and chat. I live in California. My whole world...

Manty54

•4 months ago

8 Replies

Help- my 18 year old just diagnosed with grade 4

My oldest, my 18 year son was complaining about headaches for a week. We took him to doctor on Saturday and by the evening we had an MRI of large brain lesions...

My oldest, my 18 year son was complaining about headaches for a week. We took hi...

Sjdhunt

•4 months ago

9 Replies

Chemo pills

My husband started his radiation and chemo pills Monday. It is recommended to take the pills before bedtime. After taking the pills he won't go to bed. He's...

My husband started his radiation and chemo pills Monday. It is recommended to ...

Nylo

•5 months ago

4 Replies

Aphasia

My husband is one month out of his tumor being 100% removed. His aphasia seems to be worse then it was 2 weeks out from surgery. He just started speech...

My husband is one month out of his tumor being 100% removed. His aphasia seems t...

Nylo

•5 months ago

4 Replies

BRIAN APP - HOLISTIC NEEDS ASSESSMENT

The Brian App now has a new function where you can create a personal holistic needs assessment. This can be found by going to Home > Get support and...

The Brian App now has a new function where you can create a personal holistic ne...

Tansi75

•6 months ago

Be the first to reply

Temozolomide Side Effects

My dad is on his 2nd cycle of TMZ (300mg)5 days on, 3 weeks off regime. He had GBM located on his left frontal lobe but due to size and depth could not be...

My dad is on his 2nd cycle of TMZ (300mg)5 days on, 3 weeks off regime. He had G...

Casper438

•6 months ago

5 Replies

Why we need a paradigm shift in Health Care professionals current beliefs and thinking

The current belief and thinking of Health Care professionals is that a high-grade brain tumour is a ‘death sentence’ from which there is no hope of a......

The current belief and thinking of Health Care professionals is that a high-grad...

Tansi75

•6 months ago

11 Replies

Diet plan consultation

Has anyone got any information about diet or supplements? There was a post about berberine and 5HTP along with other medicines. My sister who is 43 years old...

Has anyone got any information about diet or supplements? There was a post about...

Speed_of_light

•7 months ago

4 Replies

How Star Trek influenced my belief in a way to improve survival for a high-grade tumour

After my operation in May 2010, whilst I was alone on the ward, between my wife’s visits, I did a lot of reflecting but also more importantly started to follow...

After my operation in May 2010, whilst I was alone on the ward, between my wife’...

Tansi75

•7 months ago

4 Replies

Is it time to stop using the words ‘terminal cancer’ and instead use ‘grade 3 or 4 cancer’ for high grade tumours?

This topic also links in with my other posts on the BRIAN APP of ‘Why we need a paradigm shift in health professional’s current belief’s and thinking’ and ‘How...

This topic also links in with my other posts on the BRIAN APP of ‘Why we need a ...

Tansi75

•7 months ago

5 Replies

Grants available from The Jay C Trust

We have been made aware of a grant giving organisation, The Jay C trust, who are allocating grants of up to £500 to those diagnosed with Glioblastoma, living...

We have been made aware of a grant giving organisation, The Jay C trust, who are...

Zhaleh_TBTC

Administrator•7 months ago

Be the first to reply

Glibobastoma

I was April completely healthy or so I thought. After complaining of headaches which doctors said most likely cluster headaches.. I didn't think much more...

I was April completely healthy or so I thought. After complaining of headache...

25049462

•8 months ago

5 Replies

communication

Has anyone experienced communication difficulties, speech and texting, halfway through 6 monthly chemo? Came on suddenly.

Has anyone experienced communication difficulties, speech and texting, halfway t...

positive64

•8 months ago

11 Replies

Glioblastoma grade IV

Please suggest medicines to relieve recurrent headaches due to progression and resultant edema.

Please suggest medicines to relieve recurrent headaches due to progression and r...

kukiiit

•8 months ago

Be the first to reply

Any advice apprecaited

My husband was dx with a grade 4 glioblastoma wild type Feb 2023. Since then the full round of chemo and radiation and 3 five day cycles of TMZ. we started...

My husband was dx with a grade 4 glioblastoma wild type Feb 2023. Since then th...

Buffalolove

•8 months ago

4 Replies

Lespoz

Hi my father's 18months into his 14month prognosis bless him he's had chemo radiotherapy unfortunately his mobility has become very bad due to the numbness in...

Hi my father's 18months into his 14month prognosis bless him he's had chemo radi...

Lezpopz

•8 months ago

6 Replies

Glioblastoma

Hello, I am an elderly woman caring for a person who is being treated for grade 4 glioblastoma. I am interested in all things good health and am very concerned...

Hello, I am an elderly woman caring for a person who is being treated for grade ...

Vovaly

•8 months ago

1 Reply

I'm a caregiver

I care for a family member who has grade 4 glioblastoma. I am looking for more information

I care for a family member who has grade 4 glioblastoma. I am looking for more i...

Vovaly

•8 months ago

Be the first to reply

Brain fog, weakness meds or tumour?

New to this thank you. I am looking for information. I have a newly diagnosed grade 4 gliobastoma which has been recently debulked. I am currently awaiting...

New to this thank you. I am looking for information. I have a newly diagnosed gr...

Lin32

•8 months ago

6 Replies

Feeling utterly helpless

Hi, my mum (early 60s) has been diagnosed with glioblastoma on her right side of her brain spreading to her corpus callosum. Surgery was considered too risky...

Hi, my mum (early 60s) has been diagnosed with glioblastoma on her right side of...

Hidden

•9 months ago

5 Replies

dealing with loss

We’ve just lost my sister who was 54 to Glioblastoma. She was a mum, daughter and sister and a wonderful, loving and rock to us all. Just 5 weeks! How do I and...

We’ve just lost my sister who was 54 to Glioblastoma. She was a mum, daughter an...

Yeahinabit100

•9 months ago

2 Replies

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Posts - Glioblastoma Support | HealthUnlocked

Glioblastoma Support

what have I joined?

Looking for additional treatments for GBM 4 husband

Tumour is stable but having seizures

Is there a link between the use of Wi-Fi to the increased growth in people of all age groups being diagnosed with a brain tumour?

Sign our open letter

My Tumour is shrinking

URGENT! Has anyone had Lomustine and Sativex together?

GBM and Keto Diet - Urgent

Support Team Christmas opening times

hi, my husband had a surgery last Saturday and my whole world had crashed. GBM grade 4. I’m lost, and scared. I have 3 kids. 16, 13, 13

Help- my 18 year old just diagnosed with grade 4

Chemo pills

Aphasia

BRIAN APP - HOLISTIC NEEDS ASSESSMENT

Temozolomide Side Effects

Why we need a paradigm shift in Health Care professionals current beliefs and thinking

Diet plan consultation

How Star Trek influenced my belief in a way to improve survival for a high-grade tumour

Is it time to stop using the words ‘terminal cancer’ and instead use ‘grade 3 or 4 cancer’ for high grade tumours?

Grants available from The Jay C Trust

Glibobastoma

communication

Glioblastoma grade IV

Any advice apprecaited

Lespoz

Glioblastoma

I'm a caregiver

Brain fog, weakness meds or tumour?

Feeling utterly helpless

dealing with loss

Search posts

Pinned Posts

Latest poll

Have you, or your loved one, had support from any of these specialists to help manage symptoms and aid aspects of rehabilitation?

Archive