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Gilenya
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Gilenya
Anyone have experience with
Gilenya
?
Anyone have experience with
Gilenya
?
MSFlea
in
My MSAA Community
2 months ago
Medicare Part D and Gilenya
I just realized that the Medicare Part D insurers will no longer cover the Brand drug
Gilenya
. Instead they are only covering its generic form, fingolimod. Have any of you transitioned from
Gilenya
to fingolimod and if so, how are you doing and how do you feel?
I just realized that the Medicare Part D insurers will no longer cover the Brand drug
Gilenya
. Instead they are only covering its generic form, fingolimod. Have any of you transitioned from
Gilenya
to fingolimod and if so, how are you doing and how do you feel?
Flowers17
in
My MSAA Community
6 months ago
Hang in there!
I have been using
Gilenya
for 11 yrs and I have been in remission for almost 3 yrs. I just got a letter from the pharmacy that
Gilenya
is going generic and I am very scared of the change.
I have been using
Gilenya
for 11 yrs and I have been in remission for almost 3 yrs. I just got a letter from the pharmacy that
Gilenya
is going generic and I am very scared of the change.
Day41
in
My MSAA Community
10 months ago
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Update: I'm..... PREGNANT
She updated me that the other two girls who were getting off
Gilenya
at the same time as me in 2021 and who also miscarried are now mothers. So it was in fact
Gilenya
being the cause of our miscarriages.
She updated me that the other two girls who were getting off
Gilenya
at the same time as me in 2021 and who also miscarried are now mothers. So it was in fact
Gilenya
being the cause of our miscarriages.
lcms1
in
My MSAA Community
1 year ago
My rough journey starting MAVENCLAD + relapse + (bipolar!?!?)
To start Mavenclad i had to stop my previous
Gilenya
DMT for a period of multiple months during which i was expected to go without any medical treatment for my RRMS.
To start Mavenclad i had to stop my previous
Gilenya
DMT for a period of multiple months during which i was expected to go without any medical treatment for my RRMS.
Lulzy
in
My MSAA Community
3 years ago
MSAA News Update - FDA Approves Generic Versions of Gilenya®
/news/fda-approves-generic-
gilenya
/ Enjoy the read, - John, MSAA
/news/fda-approves-generic-
gilenya
/ Enjoy the read, - John, MSAA
johnMSAA
Partner
in
My MSAA Community
4 years ago
FDA Approves First Generics of Gilenya
Just received this email today: https://www.drugs.com/news/fda-approves-first-generics-
gilenya
-86886.html?utm_source=ddc&utm_medium=email&utm_campaign=FDA+Approves+First+Generics+of+
Gilenya
Jessie
Just received this email today: https://www.drugs.com/news/fda-approves-first-generics-
gilenya
-86886.html?utm_source=ddc&utm_medium=email&utm_campaign=FDA+Approves+First+Generics+of+
Gilenya
Jessie
bxrmom
in
My MSAA Community
4 years ago
Just checking in
Dermatologist is keeping check for skin cancer from the
Gilenya
. But I developed a rash so I had to go back yesterday to see if it was due to
Gilenya
. So they took pictures to send somewhere for evaluation. So I have to go back in 10 days for another check up.
Dermatologist is keeping check for skin cancer from the
Gilenya
. But I developed a rash so I had to go back yesterday to see if it was due to
Gilenya
. So they took pictures to send somewhere for evaluation. So I have to go back in 10 days for another check up.
Doubled51
in
My MSAA Community
4 years ago
I think I missed something
What has the JC virus got to do with tysebri I thought it only related to
Gilenya
What has the JC virus got to do with tysebri I thought it only related to
Gilenya
RoyceNewton
in
My MSAA Community
5 years ago
DMT'S
I went from Tysabri to
Gilenya
to Ocrevus and now going back to Tysabri...sigh I have the JC Virus, but my Neuro stated that I can do Tysabri every 6 weeks without much risk. Anyone experience the 6 week Tysabri and with JC virus?
I went from Tysabri to
Gilenya
to Ocrevus and now going back to Tysabri...sigh I have the JC Virus, but my Neuro stated that I can do Tysabri every 6 weeks without much risk. Anyone experience the 6 week Tysabri and with JC virus?
Bkboo
in
My MSAA Community
5 years ago
Vaccines FYI
Some MS therapies, including steroids and disease-modifying therapies like Lemtrada (alemtuzumab), Tysabri (natalizumab), and
Gilenya
(fingolimod), are associated with diminished effectiveness of vaccines and a risk of infection as well.
Some MS therapies, including steroids and disease-modifying therapies like Lemtrada (alemtuzumab), Tysabri (natalizumab), and
Gilenya
(fingolimod), are associated with diminished effectiveness of vaccines and a risk of infection as well.
sashaming1
in
My MSAA Community
5 years ago
Depression and more
I was very weak and unfortunately with being on
gilenya
my blood pressure stays high and im always dizzy😞 plus I have been having chest pain and tightness around my heart.
I was very weak and unfortunately with being on
gilenya
my blood pressure stays high and im always dizzy😞 plus I have been having chest pain and tightness around my heart.
Hidden
in
My MSAA Community
5 years ago
Which med???
What are your experiences with Ocrecus, Tysabri, Tecfidera, or
Gilenya
?? I think I am leading toward Tecfidera but still researching and contemplating
What are your experiences with Ocrecus, Tysabri, Tecfidera, or
Gilenya
?? I think I am leading toward Tecfidera but still researching and contemplating
Disneycde
in
My MSAA Community
5 years ago
Updates for MS, by MSAA
utm_source=Multiple+Sclerosis&utm_campaign=686460d7da-RSS_US_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_b5fb7a3dae-686460d7da-71754961 https://multiplesclerosisnewstoday.com/2019/01/17/fewer-rrms-patients-relapse-end-treatment-
gilenya
-study-finds/?
utm_source=Multiple+Sclerosis&utm_campaign=686460d7da-RSS_US_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_b5fb7a3dae-686460d7da-71754961 https://multiplesclerosisnewstoday.com/2019/01/17/fewer-rrms-patients-relapse-end-treatment-
gilenya
-study-finds/?
Hidden
in
My MSAA Community
5 years ago
FDA Warns of Possible Dangers of Stopping Gilenya
More on the website: https://multiplesclerosisnewstoday.com/2018/11/27/relapsing-ms-fda-warns-possible-dangers-stopping-
gilenya
-fingolimod/
More on the website: https://multiplesclerosisnewstoday.com/2018/11/27/relapsing-ms-fda-warns-possible-dangers-stopping-
gilenya
-fingolimod/
bxrmom
in
My MSAA Community
5 years ago
jcv
It is a problem related to
Gilenya
, so unless "YOU" plan on taking
Gilenya
it should not concern "YOU" When it comes to side effects read the forms they give "YOU" if "YOU" can as they are in small print.
It is a problem related to
Gilenya
, so unless "YOU" plan on taking
Gilenya
it should not concern "YOU" When it comes to side effects read the forms they give "YOU" if "YOU" can as they are in small print.
RoyceNewton
in
My MSAA Community
6 years ago
Tecfidera, Gilenya Equally Effective, But More MS Patients Stop Tecfidera, Real-World Study Shows
Thought this was interesting: https://multiplesclerosisnewstoday.com/2018/08/30/tecfidera-
gilenya
-equally-effective-but-more-ms-patients-stop-tecfidera-study/?utm_source=Multiple+Sclerosis&utm_campaign=701fb06bfa-RSS_US_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_b5fb7a3dae-701fb06bfa-72136581
Thought this was interesting: https://multiplesclerosisnewstoday.com/2018/08/30/tecfidera-
gilenya
-equally-effective-but-more-ms-patients-stop-tecfidera-study/?utm_source=Multiple+Sclerosis&utm_campaign=701fb06bfa-RSS_US_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_b5fb7a3dae-701fb06bfa-72136581
bxrmom
in
My MSAA Community
6 years ago
Has anyone with Secondary Progressive MS been prescribed Ocrevus or is on it?
I was diagnosed with RRMS in 1996 and about seven years ago my doctor took me off Avonex and I went on
Gilenya
. That didn’t work for me at all, I quickly worsened and now I have SPMS. My doctor doesn’t want me back on Avonex instead wants me on Ocrevus.
I was diagnosed with RRMS in 1996 and about seven years ago my doctor took me off Avonex and I went on
Gilenya
. That didn’t work for me at all, I quickly worsened and now I have SPMS. My doctor doesn’t want me back on Avonex instead wants me on Ocrevus.
Pia7
in
My MSAA Community
6 years ago
Hello
I’ve been on Copaxone, Tecfedera and
Gilenya
; I am currently taking that one. I have relapsing remitting ms. I felt relieved to finally have a diagnosis. It took about 6 years to get a diagnosis. I’m losing some weight and taking care of myself.
I’ve been on Copaxone, Tecfedera and
Gilenya
; I am currently taking that one. I have relapsing remitting ms. I felt relieved to finally have a diagnosis. It took about 6 years to get a diagnosis. I’m losing some weight and taking care of myself.
Girl50
in
My MSAA Community
6 years ago
Consecutive Use of Gilenya and Lemtrada Causes Disease Activity in MS Patient....really do you trust DMD's?
https://multiplesclerosisnewstoday.com/2018/08/21/high-ms-activity-seen-patient-after-consecutive-use-immunotherapies-case-report/ I swear they are trying to make us worse!
https://multiplesclerosisnewstoday.com/2018/08/21/high-ms-activity-seen-patient-after-consecutive-use-immunotherapies-case-report/ I swear they are trying to make us worse!
dogdaddy
in
My MSAA Community
6 years ago
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