Job interview - dealing with embarrassing sweats
Hi everyone My tapering journey has been going well and the side effects of the steroids and the withdrawal on each reduction are becoming mu...
Well, I guess there's a first time for everything... but feel I like a right idiot!!!...
So done with this
Hi everyone.. I was diagnose with Giant Cell Arteritis in Sep 2018 so I haven't had it for long it feels longer I hate the headaches,tirednes...
And the good news is . . .
It took just 10 minutes final assessment yesterday for Keith ( hospital rheumatologist ) to tell me that Giant Cell Arteritis ( GCA ) is over...
Hot Flushes increasing
I reduced my prednisolone from 10mg to 9mg at the beginning of February and just about coping with the soreness but have noticed an increase ...
I have been to see my Dermatologist and she is adamant this time it is not Vasculitis and says Dermatitis....
Why is this necessary?
Diagnosed GCA, on Pred , however Consultant has recommended an Endoscopy and Colonoscopy. I do not have any symptoms and feel bad enough, so ...
Could this be PMR or Steroid side effect ?
I wondered if this being unable to move has happened to anyone else and if it could be due to either PMR or Pred?...
Pred tapering starts tomorrow
I was diagnosed with GCA/PMR May 7th and started on 60mg of prednisone. I will be lowering that dose to 50mg tomorrow....
GCA and people not understanding
My Father is sending me a cutting from the Mail about GCA and I think I will keep it with me to show to them!...
NICE approves Tocilizumab for Giant Cell Arteritis!
There hasn't been a reliable new drug for GCA for 70 years, when steroids were first used in a case in France....
"9 out of 10 doctors on our payroll, recommend this product!" ~ Big Pharma : (
Oh Goody!!! Bio-Thera Solutions, a global biotechnology company based in Guangzhou, China, recently announced that it has initiated a phase 1...
Looks like I need to watch what I say
I am not sorry for what I said, but I will refrain from talking about my experiences in life with PMR. For those of us that have PMR, you kno...
Who the Hell is Ali ibn Isa?
He may be the guy who documented the very first written account of a TAB ( Temporal Artery Biopsy ) procedure; sometime between 940 to 1010 A...
So today a neurologist came in at 11:00. Did a lumber puncture right in the room....
Tocilizumab is not approved by NHS England for GCA on cost grounds
I am very sorry to have to share the news that NICE, the National Institute for Health and Clinical Excellence, has rejected approval of toci...
The Lighter Side: THUNDERBIRDS are ‘GO’! At Last, the ‘Write Me Funny…’ book website goes ‘Live’
You can access my book website at: writemefunny.co.uk or visit the main PMRGCAuk website, go to ‘ Books about PMR and GCA ’, click on the...
New to GCA
Just got diagnosed with Giant cell arteritis. Have so many questions and feeling scared....
Websites - useful stuff, articles, resources
Articles on: Few side effects due to PMR compared with an age-matched cohort not taking prednisone ( Thank you PMRpro, I lifted your descript...
GCA and tocilizumab withdrawal
Has anyone given up taking tocilizumab ( Actemra ) and remained in remission or did you get GCA back. Is there a program to reduce injections...
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