Tocilizumab is not approved by NHS England for GCA on cost grounds
I am very sorry to have to share the news that NICE, the National Institute for Health and Clinical Excellence, has rejected approval of toci...
Websites - useful stuff, articles, resources
Articles on: Few side effects due to PMR compared with an age-matched cohort not taking prednisone ( Thank you PMRpro, I lifted your descript...
Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide. 2nd edition. Kate Gilbert PhD
Just finished this book... I HIGHLY recommend to someone newly diagnosed like me!...
The Lighter Side: THUNDERBIRDS are ‘GO’! At Last, the ‘Write Me Funny…’ book website goes ‘Live’
You can access my book website at: writemefunny.co.uk or visit the main PMRGCAuk website, go to ‘ Books about PMR and GCA ’, click on the...
I was was diagnosed with pmr 17months ago and am on 7mg of predisolone every 2nd day and managing....
GCA and Tocilizumab
I am taking the above for GCA and have had two infusions and two injections....
Steroid withdrawal symptoms
Hi, I'm new to this, came off steroids after three and a half years. I had giant cell arteritis and polymialgia have aching arms and sometime...
I have been so ill for nearly 18 months and I understand that this new drug for GCA has a 55% chance of remission in about 6 months....
Giant Cell Arteritis - Tocilizumab - NICE
If you have had any experience of being treated with Tocilizumab for GCA/TA - favourable or unfavourable then please can you contact, me, Joh...
Newbie with Temporal Arteritis. New drug Tocilizumab (actrema)
Hi, I am new and have been reading a lot of good info an was so comforted when I read a post by another newbie who also has been in this batt...
Giant cell arteritis
I just this minute signed up with healthunlocked. I am looking to talk with someone who has giant cell arteritis.......
Hot flushes (and gratuitous baby photo).
I know we've discussed this before and I am much more in control of hot flushes now. I was wondering.......
Cause of Hot Flashes?
Are hot flashes caused by PMR or prednisone withdrawal, or can they be caused by either one?...
2017 sees several new drugs for rheumatic illnesses - including GCA
2017 has been a good year for new drugs for inflammatory rheumatoid conditions, and at last tocilizumab has been approved by the FDA in the U...
GIANT CELL TEMPORAL ARTERITIS AND THE LINK TO SEIZURES
It is 4 years plus since I was diagnosed with GCA [ double vision etc,etc ] and 2 years ago when down to 1mg of Prednisolone I had a relapse....
PMR / CRA assesment
I have had complete blood work up relative to a PMR ~ ESR 61 2-30mm/hr; LO Hemoglobin, Hematocrit, RBC, Albumin ~ HI Neutrophils, Leukocyte E...
Cause of GCA chicken pox and shingles virus??
Picked up the following today from a Facebook group for GCA based largely in USA thought this may be of interest to share:- A new study devel...
And the good news is . . .
It took just 10 minutes final assessment yesterday for Keith ( hospital rheumatologist ) to tell me that Giant Cell Arteritis ( GCA ) is over...
Hi all thought i would bring you up to date as not posted for a while. After having a seizure in feb I was told it could be a one off, no suc...
What to buy OH for Christmas
As Christmas is looming again I thought I'd tell you how to bring back that childhood feeling of the excitement at being faced with a pile of...
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