Well, I guess there's a first time for everything... but feel I like a right idiot!!!...
And the good news is . . .
It took just 10 minutes final assessment yesterday for Keith ( hospital rheumatologist ) to tell me that Giant Cell Arteritis ( GCA ) is over...
Pred tapering starts tomorrow
I was diagnosed with GCA/PMR May 7th and started on 60mg of prednisone. I will be lowering that dose to 50mg tomorrow....
NICE approves Tocilizumab for Giant Cell Arteritis!
There hasn't been a reliable new drug for GCA for 70 years, when steroids were first used in a case in France....
GCA and people not understanding
My Father is sending me a cutting from the Mail about GCA and I think I will keep it with me to show to them!...
Tocilizumab is not approved by NHS England for GCA on cost grounds
I am very sorry to have to share the news that NICE, the National Institute for Health and Clinical Excellence, has rejected approval of toci...
Could this be PMR or Steroid side effect ?
I wondered if this being unable to move has happened to anyone else and if it could be due to either PMR or Pred?...
Looks like I need to watch what I say
I am not sorry for what I said, but I will refrain from talking about my experiences in life with PMR. For those of us that have PMR, you kno...
The Lighter Side: THUNDERBIRDS are ‘GO’! At Last, the ‘Write Me Funny…’ book website goes ‘Live’
You can access my book website at: writemefunny.co.uk or visit the main PMRGCAuk website, go to ‘ Books about PMR and GCA ’, click on the...
Who the Hell is Ali ibn Isa?
He may be the guy who documented the very first written account of a TAB ( Temporal Artery Biopsy ) procedure; sometime between 940 to 1010 A...
So today a neurologist came in at 11:00. Did a lumber puncture right in the room....
New to GCA
Just got diagnosed with Giant cell arteritis. Have so many questions and feeling scared....
"9 out of 10 doctors on our payroll, recommend this product!" ~ Big Pharma : (
Oh Goody!!! Bio-Thera Solutions, a global biotechnology company based in Guangzhou, China, recently announced that it has initiated a phase 1...
Websites - useful stuff, articles, resources
Articles on: Few side effects due to PMR compared with an age-matched cohort not taking prednisone ( Thank you PMRpro, I lifted your descript...
GCA and tocilizumab withdrawal
Has anyone given up taking tocilizumab ( Actemra ) and remained in remission or did you get GCA back. Is there a program to reduce injections...
Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide. 2nd edition. Kate Gilbert PhD
Just finished this book... I HIGHLY recommend to someone newly diagnosed like me!...
Muscle heaviness .
Hello I can feel the PMR is active in my body ,it is a wierd feeling which I expect you all can relate too. I can cope as its not pain as suc...
Any bowel problems with GPA?
Hi, for several months now I've had a change in bowel habit. Colonoscopy clear thank goodness....
I was was diagnosed with pmr 17months ago and am on 7mg of predisolone every 2nd day and managing....
GCA and Tocilizumab
I am taking the above for GCA and have had two infusions and two injections....
Start a Community