blackstone16 months agoPOPULAR
I was was diagnosed with pmr 17months ago and am on 7mg of predisolone every 2nd day and managing....
Jeanjean165 months ago
I know this is a side effect of pred, does anyone use a cooling spray and if so does it help?...
maria409 months agoPOPULAR
Just heard on BBC news that new research justifies some scepticism on the efficacy of bisphosphonates in combating bone decay. Also casts som...
GCA and Tocilizumab
christine27153 months ago
I have been so ill for nearly 18 months and I understand that this new drug for GCA has a 55% chance of remission in about 6 months....
Chross3 months ago
I have recently been diagnosed with GCA, and i am booked for a cruise in Feb, but cannot get travel insurance, I am going onto the clinical t...
Newbie with Temporal Arteritis. New drug Tocilizumab (actrema)
lindanna4 months ago
Hi, I am new and have been reading a lot of good info an was so comforted when I read a post by another newbie who also has been in this batt...
Giant cell arteritis
Buddyk5 months ago
I just this minute signed up with healthunlocked. I am looking to talk with someone who has giant cell arteritis.......
GIANT CELL TEMPORAL ARTERITIS AND THE LINK TO SEIZURES
Richard20127 months ago
It is 4 years plus since I was diagnosed with GCA [ double vision etc,etc ] and 2 years ago when down to 1mg of Prednisolone I had a relapse....
Cause of GCA chicken pox and shingles virus??
DevonMichael10 months ago
Picked up the following today from a Facebook group for GCA based largely in USA thought this may be of interest to share:- A new study devel...
Sunday Times 16 July 2017
DevonMichael4 months ago
Sunday Times 16 July 2017 If you have access to a Sunday Times today ( 16 July 2017 ) the magazine carries an interesting article ( page 32 )...
What to buy OH for Christmas
ShellyC23a year ago
As Christmas is looming again I thought I'd tell you how to bring back that childhood feeling of the excitement at being faced with a pile of...
Cause of Hot Flashes?
Steve20027 months ago
Are hot flashes caused by PMR or prednisone withdrawal, or can they be caused by either one?...
Suzywhizzoa year ago
Dear all, I just have a quick question. Has anyone had a successful lumber puncture which diagnosed their illness and with no reprocussions a...
Younger age GCA data?
CloudGazer6a year agoPOPULAR
I was very disappointed to see on the first page of this brand-new book that the authors state in the ' Preface ' that PMR and GCA are ' excl...
Causes of GCA?????????
PMRpro2 years agoPOPULAR
Thought others might like to read this which I found when searching for a link between RA and GCA Rheumatoid arthritis and giant cell arterit...
PMR / CRA assesment
hedgehog82 months ago
I have had complete blood work up relative to a PMR ~ ESR 61 2-30mm/hr; LO Hemoglobin, Hematocrit, RBC, Albumin ~ HI Neutrophils, Leukocyte E...
tocilizumab for gpa?
roobuba year ago
have any of you had treatment with this drug for small and medium vessel vasculitis and with what results as most of the info i can see is ab...
Tocilizumab for Giant Cell Arteritis (Temporal Arteritis)
Suzym2ua year ago
John Mills on behalf of VUK are interested in hearing about the experiences of anyone who has been treated with Tocilizumab for treating GCA....
Gillymar10 months ago
I have been on Laxidu powders 1 or 2 nightly following. a bowel cancer scare some years ago which luckily turned out to be diverticular disea...
Tocilizumab and Giant Cell Arteritis
John Mills on behalf of VUK is Interested in hearing about the experiences of anyone who has been treated with Tocilizumab for treating GCA. ...
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