Well, first came chronic Pancreatitis 36 yrs ago, followed by recent Bronciectasis and ABPA.
And now the the bomb shell: Adult CF. It sure connects a lot of dots. But a new set of obstacles.
Being tapered off the Prednisone and eliminating the anti-fungal Isavuconazole. Seeing if I can qualify for Nucala (mepolizumab) and seeing CF specialist on the 22nd. Anyone else sharing this boat?
Written by
Rio11
To view profiles and participate in discussions please or .
I have bronchiectasis and they tested me twice for Cystic Fibrosis with negative results. Having a diagnosis is good. Isn't Adult CF rare? Good luck with the specialist.
CF is caused by mutations in one gene but there are 1500 known different mutations. Very complex and vastly differing impact on the lives of people who live with it depending on the specific mutation cysticfibrosis.org.uk/about...
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.