Bad news

[Collinjo1]

Have been on immunotherapy for 4 treatments, had ct scan done, bad news two tumors have grown by 20%, have been offered a clinical trial,will find out tomorrow if i qualify

[Pandora8205]

also bad news....... was not feeling well chest hurt from coughing thought from paralyzed vocal cord so doc did Ct scan today I was also on opdivo 3 treatments the 4th was due tomorrow.. left lung 2tumors grew significantly and they found 3 mets in the right lung and now the liver has mets. I was told it was good news ekg came back normal and no blood clot... now I am in the crying stage.I get mad and positive tomorrow. I just need to catch a break. I get to find out tomorrow what the next step in the plan is....... he also wants to start xgeva for the bones... does anyone have any experience?

[janiceowens1957 in reply to Pandora8205]

I am so sorry to hear this Pandora8205. My husband has finished his 3rd round of Opdivo also scheduled for 4th this coming Tuesday the 23rd. This week he has started complaining of increased chest pain also with a terrible cough. He also has paralyzed vocal cords. He was inoperable. He has already went through the traditional Chemo and radiation that failed. Has been on one other trial. So I don't know where we go from here. I will lift you up in prayer and please keep us updated.

[gibdonnalee Community Superhero in reply to janiceowens1957]

So sorry your loved one is going through all this. This site gives out a lot of prayer and hugs! So hopefully they will help. Crying is a release for what you are experiancing , so go ahead and let your feelings out!

[Pandora8205]

Collinjo1. I truly hope this trial will be what you are needing. Lots of fingers crossed.

[Denzie Moderator Volunteer in reply to Pandora8205]

Pandora,

So very sorry that this trial did not work for you. Please update us when you talk to your doctor. Sending hope that this next step is the break you deserve.

[Denzie Moderator Volunteer]

Collinjo,

Hoping this trial works. The care you'll receive in a trial is excellent. And for so many trials have been the answer to their prayers and that is my wish for you

[Kenny1108]

Just yesterday I was told Opdivo not working after 8 treatments. Cancer cells in lung fluid that wont go away. This will be my 3rd level treatment. Not sure what to think.... Dr. says that there are options on table like clinical trials. He has other chemo he can try. I'm heading off to my 2nd opinion dr. next week to see what he says. He is at Abramson Cancer ctr in Philly. He said the Opdivo treatment was the next protocol after the original chemo stopped working ( shrunk tumor but cancel cells stayed in fluid ). I will keep a positive outlook for me and family. Prayers to all on this thread dealing with poor Opdivo results.

[PegD]

Very sorry to hear that Immuno has stopped working. There are other options but the disappointment of progression after any treatment can be devastating. Hoping and praying for better new for all.

[ThePurplePlace]

OH Gosh....!!

SO very sorry to hear from all of you who had been on Opdivo and not had the results we all so want and hope for. I do hope that you'll all find new treatment options and will work better.

There is just so much we still do not know and understand about the Immunotherpay meds....why do they work so well for some, why do some experience terrible side effects, and why do they not work at all for others. I sure WISH we knew all the answers.

Best of luck to you all...

[FtB_Peggy]

Ditto to the words of ThePurplePlace....

[scifiknitter Blogger]

I'm sorry, this is difficult news for you to get. Sending best hopes that you qualify for the clinical trial and best wishes as you decide what your next best option is.

Anita

[Hidden]

I'm sorry for the news Collinjo1. Just keep you head up. there are many options for this kind of cancer, so don't loss faith because 1 doesn't seem to be working.

Just a heads up; that the FDA approved this immunotherapy drug Keytruda in combination with a chemotherapy drug. Ill try to send the link to you. ( if this site will let us) The question is how do we let our Oncologist know about such treatments? Are we only to accept what ever the Oncologist only recommends? I'm trying to research as much as i can about this disease on behalf of my father, so i'll be armed with as much info, as I can. But seems like my dad has become attached to his oncologist. Just want all the possible remedies covered. How do you guys approach this?

Keep smiling.

[pmsusan99]

Onocologist know of these treatment I bring all articles treatments and thoughts to Dr. See what his thoughts a

Are and if not happy head for 2nd opinion. Remember this is your dads life.

[Denzie Moderator Volunteer]

Any update?

[gibdonnalee Community Superhero]

Collin, I know what your going through is so frustrating Try to stay positive, I know it's far from easy!! Hope you qualify for the trial. Prayers and hugs to you.

[Patti72]

Hello Collinjo, I'm Patti I pray for healing. In advance, Lord, comfort, and good news tomorrow🙏🌈