Hip Pain: I was diagnosed with stage... - Lung Cancer Support

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Hip Pain

scottcharlop profile image
8 Replies

I was diagnosed with stage 4 nsclc and multiple myloma in Feb.2016. I've had chemo with carboplatin and neulasta which was tough on my body. I went to immunotheropy with Optivo and now back on chemo with Abraxzane. The cancer has spread to my hips and the pain is terrible to bear. Has anyone experienced anything similar?

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scottcharlop profile image
scottcharlop
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scifiknitter profile image
scifiknitterBlogger

Scottcharlop, you are dealing with A LOT with that double diagnosis. I'm sorry that Opdivo didn't work for you, that had to have been a tough day when you got that news.

Has your doctor discussed palliative radiation of your hip bones with you? I'm no expert on bone Mets, but I understand that sometimes that is done and that it can bring relief from pain.

Anita

Enjoyabull profile image
Enjoyabull

I have been theough similiar chemo as you and had a lot of pain. My Dr. Prescribed 10 mg of oxy every 4 hours or the other option I have is the 12 hour timed release. I am foggy most of the time and I cant drive but I have no pain.

Denzie profile image
DenzieModeratorVolunteer

My dr gave me fentanyl patches for my pain. They are replaced every 72 hours. I use norco for break through pain. They made me sleepy at first as they are opiates but I do very well now.

FtB_Peggy profile image
FtB_Peggy

I am so glad you shared your story with us. You will get good advice and support here - so welcome! Don't hesitate to tell your medical team about your pain, if you have a nurse navigator or social worker, you can start there. But either way, please do not suffer silently. If the meds they give you aren't working right, or if they have side effects, make sure your team is aware of that too.

I hope you find relief soon, will be thinking about you, please keep in touch!

agnes1944 profile image
agnes1944

i had a mass inbetween my ribs and i wanted to rip my ribs out nothing took the pain away except opdivo

scottcharlop profile image
scottcharlop

Thanks I will try it.

Jessi08 profile image
Jessi08Volunteer

I have heard the same about radiation to the area relieving pain, I know what's right for some might not be for others, but a question to ask the Dr nonetheless scottcharlop

scottcarlop hi i'm jo I don't think I know of anyone that has both. I have nsclc stage three. I s been over three years I am now cancer free. Even though you have two things going at once. Keep on fighting and don't give up. Hopefully things will get better. I hope they are giving you something for the pain. Welcome Freetobreathe/Healthunlocked is a great site and every one on here is wonderful. if you need someone to talk to i'm here. Jo Taylor

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