I’m a long-time blogger who will celebrate the 10th anniversary of writing my first blog post this coming Christmas Day. My blog used to be about work, my family’s adventures on our sailboat, the things I knit, my daughter’s growth from teenage years through college. When I was diagnosed with stage IV lung cancer in June 2014, my blog’s focus changed to what it’s like to receive such life changing news, how to live with a terminal disease, and fact-based reports about lung cancer, with a smattering of family and knitting news. Now I am retired and the sailboat has been sold to another family. I’m leading a quiet and thoughtful life, still full of knitting and reading and searching for new knowledge. I recently realized that the purpose of my remaining life is to AMPLIFY - to spread news about lung cancer research, survivorship skills, and everything else I find fascinating as widely as I can.
Medical information about me: I have stage IV adenocarcinoma with an EGFR exon 19 deletion mutation and also a T790M mutation that developed in my first line of treatment. My treatments to date: erlotinib for 10 months, then a phase 2 clinical trial of rociletinib for 8 months, and most recently osimertinib for 8 months and counting. I am currently feeling shockingly well. I am a realist, however, and know that this lovely period will not last forever. I expect my next line of treatment to be chemotherapy with carboplatin and permetrexed. I also was diagnosed with Multiple Sclerosis nearly 20 years ago, but this condition has long been stable and it feels like a minor issue these days.
Personal information about me: I just turned 65, an age I wasn’t sure I was going to reach. I’ve been married for 35 years. We have a son from my husband’s first marriage, three grandchildren who are in their teens and 20's, and a daughter. Our daughter is a biostatistician in a post-doctoral fellowship with the National Cancer Institute, so I can always get good explanations of what those numbers mean in research papers. I worked as an accountant for a non-profit organization, and am quite interested in the financial implications of cancer treatment. I live in northern New York, in the foothills of the Adirondack mountains. My husband and I own 135 acres of mixed hardwood forest and beaver pond, and our owner-designed and built home is surrounded by trees, and gets its electric power from solar panels.
I'm looking forward to being involved with this community.