Letters to loved ones

hi everyone. Feeling kind of emotional tonight. I recently got pneumonitis from my opdivo treatments in my left lung which is the better of my two lungs. The right one is only at half capacity due to the cancer. They had me in the hospital for about a week and now I am finally home to finish out my medication and steroids. The episode scared me so much because at times I could hardly breath and it was painful. I decided that I should write Letters to my children and grandchildren for them to have when I am no longer here. To say the things you just don't say enough Everyday. I never realized just how hard this was going to be on me. Has anyone else done this too?


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10 Replies

  • I just had my seventh infusion of Opdivo.

  • How is it working for you?

  • I feel great, no scans yet and the only side effect is an under active thyroid which they gave me a hormone replacement.

  • I start on optdivo next Thursday! How are you doing on the optdivo?

  • I did the same thing after my brain surgery. It was soooo hard. But now that's done and I can move on to the next task.its still surreal.

    I just went to the Dr for the flu, I came out with 37 staples in my head, stage four lung cancer?

    Feel good that you are talking care of those things. Nothing is more important, than letting our children know how much they are loved.

    I know how hard it is, thinking you won't be here for them. I try my hardest to believe that God gave me this 2nd chance to make sure my affairs are in order. Whether I get another year or 5 years. Gods with me! I'm praying for you, your not alone. Thank you for sharing, now I know I'm not alone either!

  • Thank you so much for sharing with me it made me feel so much better. I was stage 4 also by the time I was diagnosed and my cancer had moved to my head bones liver and was in both lungs. Without immediate chemo I would have only lasted a few months. I never thought of it as god giving me a second chance to get my affairs in order but I definitely believe that. Again thank you so much.

  • Thank you for sharing, it made me feel some what normal! And not alone. It's so hard sometimes to find positive in what we are going through, but together maybe we can lift each other up. I know reading other posts and sharing helps. Glad to hear your feeling a little better!!😊 Keep in touch

  • I haven't, but it is a great idea! Those letters will be cherished by the recipients. I know that's true because I have friends whose moms left them letters. It doesn't mean you are getting ready to die. It just means you are taking care of some things you want to do while you are alive.

  • I also am suffering from radiation pneumonitis after my treatment which ended last Christmas week. I'm on oxygen 24/7 now, lost my job and benefits, though God helped me out there with disability and new insurance quickly. This is the most scared and down trodden I've felt since diagnosed and treated last fall. I did so well during radiation/chemo, now this. Damage to lungs from treatment. I feel for you and pray this ends well for us both. God is in control, I know that.

  • My husband has same thing. How are you?

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