New at this. : our Dr suggested a low... - Lung Cancer Support

Lung Cancer Support

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debanddick profile image
15 Replies

our Dr suggested a low dose cat scan because my husband and I are smokers and starting cold. We really didn't have signs, . So we went, 2 hours later we were called in. She told us he had cancer and we need to get on this real fast..biopsy  showed stage 2 small cell . To use toon of left lung was closed off. Because of it being small cell they said they can not operate. He just finished 30 rounds of chemo, and Wednesday goes for 4 th 3 day cycles of chemo. Meet with Dr that day. Radiation said he can't have scan for about 6 weeks, till the radiation gets out of system. Can't wait to see what chemo dr tells us on Wednesday. Feel really scared about waiting 6 weeks for next scan. Hoping he says there is one that can show if the treatments have worked or not. Praying for the best.

He has done really well through all the treatments. Just tired after the days of both treatments . Lost most hair, ( dark ones) . Only has grey left, witch isn't bad. Other than the drive of 35 miles each day to go for 5 minute radiation he has done great. To good actually. Because of feeling so well I guess we aren't taking this cancer thing seriously. 

We found out Jan 14 th. Took 5 weeks before chemo started , then radiation. Now holding breath till Wadn May 4 to see what is next. But feeling very good about it all. 

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debanddick
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15 Replies
Ruthie1950 profile image
Ruthie1950

Good luck!  Sounds like he's doing great.

Wardth profile image
Wardth

Mine was discovered the same way, no symptoms , just had a mild cough Dr ordered a ct to be on the safe side, nodule right lower lobe squamous cell carconima . Radiation treatments , then wait till July for ct scan ,to see if it is gone. I know how you feel , I felt like I was blindsided . It sounds like they are on this , and that is very good. Good luck and I hope for the best results for you. 

Mary43 profile image
Mary43 in reply to Wardth

How are you doing? I have chatted with you before.  I had the same as you but they remove the right bottom lobe. No chemo or radiation. In my follow up this month my numbers were up some with the blood test. So he moved my Pet Scan from Nov till August. I don't know about the numbers ?? But it's scary. I had a MRI of my brain yesterday because of headaches.  

Wardth profile image
Wardth in reply to Mary43

I am doing ok ,thanks for asking , just waiting till July for the blood test and CT scan. I don't know what they look for in the blood tests, I am guessing white blood cell counts but could be wrong. My onocaligst never said. I think you have an excellent dr .you just have to trust his judgement . He is doing his best to stay on top of this, time is very important when it comes to this disease , I came very close to not having the ct scan in November . My wife kept after me to listen to my dr. I don't want to think what the results might have been if I had waited. I know it is scary ,a million thoughts go through our minds , if your blood test is up it can mean an infection or other problems. But the cancer is the first thought because it is always on our mind, I was told if my tests are good in July I will have to have a ct scan every six months, for the next 2yrs. I pray a lot and that helps. I wish I could wave a magic wand and it would go away for all of us. Just try to stay as positive as you can and try to keep your immunine system up . Good luck.

Mary43 profile image
Mary43 in reply to Wardth

Glad you are doing ok. I found out today that the the blood test is called 5-HIAA levels it a metabolite of Serotonin and is produced in the presence of carcinoid tumors. It was only elevated a little . I googled this on the Internet!!  Take care and talk to you soon again. Mary

dreich58 profile image
dreich58

I wish my dr had ordered a chest X-ray or CR scan when I mentioned my cough. She didn't though and I ended up in the ER with stage 4 lung cancer. I'm on oral chemo though and am doing good.

rubyred777 profile image
rubyred777 in reply to dreich58

Glad you are doing well, dreich.   Wondering what is oral chemo? 😊 Rubyxx 😊

dreich58 profile image
dreich58 in reply to rubyred777

Rubyred777, I take a pill, Tarceva, every day. It is one of what they call targeted therapies. I have the gene mutation that responds to this chemo drug.

bderiese profile image
bderiese in reply to dreich58

Do you have side effects? I start Tarceva tomorrow! Very nervous!

dreich58 profile image
dreich58 in reply to bderiese

I am on 150 mg. and the side effects I have are:

1) diahrrea - keep Imodium on hand. Track what you eat to see if something triggers it. Consider avoiding dairy products. Take a probiotic; the oncology nutritionist recommended Good Belly which works for me; available at Safeway or Amazon.

2) rash - will show up sometime in first couple weeks. Your oncologist should prescribe something for it.

3) dry skin - you will want to try to find an alcohol free and fragrance free lotion. Eucerin is good. I use O'Keefe's for my hands and feet. Finger nails may peel and/or break easier. I just keep them clipped short.

4) thinning hair - you won't lose it completely.

5) long eyelashes - some consider this a benefit. Intweeze mine when they curl into my eyes. Went to my eye dr. the first time though.

6) acid reflux/heartburn - you MUSTvtalk to your oncologist about this before you take anything. Tarceva needs an acidic stomach to work.

If I think of anything else I'll add on. Seems like some of the side effects come and go.

bderiese profile image
bderiese in reply to dreich58

Thank You!!!!!

rubyred777 profile image
rubyred777

Much luck to you and your husband,. Thats wonderful how well he's handling  the chemo. Fingers crossed for you guys. 😊 Rubyxx 😊

Dawgts69 profile image
Dawgts69

May God heal your husband through the this difficult time.  God bless 

Goffy142 profile image
Goffy142

Sounds like you are doing well glad to hear that. Very incourageing Keep up the great work

tclementi profile image
tclementi

Glad you are doing well! If you want more lung cancer info, check out patientpower.info/lung-cancer

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