Foggy's "Invisible Illness" Support
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Non diabetic neuropathy

Hi

I'm suffering from non diabetic neuropathy and I can't find any relief I was on gabapentin but it seems not to work. They put me on lyrics and I had a bad reaction. I was looking for some suggestions

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I suffer with nerve pain as well. I take morphine tablets and GABAPENTON. It helps but the pain is still b d at night. I think I just have to live with it.

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I have peripheral neuropathy and have found that Azathioprine helps a lot.Gabapentin and Pregabalin didn't !

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Hi same with me. Gaberpentin and pregabalin no good. Haven't found anything that works for me. Just putting up with it at the moment.

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I meant to say Amitriptylene not Azathioprine !

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Hi

Gabapentin gave me relief to begin with but then I needed higher doses and I began to feel like a zombie ! so I stopped taking it. I am now on Amitriptyline which is an antidepressant but also used to treat nerve pain. I am only taking a low dose which I take in the evening and in the last month of taking it I have only had 1 night when the pain has kept me awake. Getting more sleep has made a real difference overall.

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i am taking Lyrica 25mg twice a day.gets rid of pain and reduces a lot of discomfort.tried all sorts,but having to live with.It's good to keep reading comments on things worth trying

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I do 2700mg gabapenton and 60mg duloxine. Drugs don't work as well as they did. I am a living functioning successful person that would prefer to go to sleep and never wake up. It is a horrible illness.

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on gabapentine,digoxin and lyrica I need to drive and am frightened of taking too many drugs. Would love to be without pain. Any sugggestions.? yvonne

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What r ur symtoms my arms and shoulders kill me. I think i have non diabetic Neuropathy. I go to neurologist this Wednesday. If u wanna talk reply

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I suffer from idiopathic neuropathy. It started on one side of my right foot and is now in both feet and legs from knee down - horrible sensations of prickling, burning, soles of feet feeling thick and spongy and sometimes icy cold even though warm when touched. Also get a lot of cramping.

Neurologist can't help and I have refused the drugs offered - my husband tried all of them and had horrible side effects, especially with Lyrica which took him a long time to get over.

I am thinking of trying Alpha Lipoic Acid as I have read it can really help neuropathy - they do mainly say diabetic neuropathy, but think I may give it a try as some people say it has worked wonders.

Has anybody here tried it?

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If you dont like drugs try the gymn. The physio gave me stretching exercises and said I had to do gymn 3 times a week. I have had to work hard but I am much better

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My physician referred me to a foot specialist. He ordered me a cream, that's comes in a pump bottle. I haven't received it yet but, another friend told me that it works great.

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I am on Lyrica too or Pregablin which I think is its other name, I am normally ok with it but my feet have been really bad this last week or so, keeping me awake or waking me with the burning, tickly, irritation. I think its because due to the nerve damage my skin on my feet builds up really quickly and its because I need to get some moisture into my skin but whatever I put on it makes it sore or irritates it more.

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On methadone for mine

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Cymbalta works vret for pdriphal neuropathy

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I too have the nondiabetic neuropathy. I have been able to get relief from the burning and the pain by taking B12 injections. I started with 1 a day for 5 days. Then 1 a week. I tried to go for 1 a month, but that didn't not work. So, I figured out that 1 a week works. So, 1 a week for me works. I have been doing this for almost a year. Good luck and I hope this helps.

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One other thing about the B12 injections you may have to convince your doctor. My was reluctant at first, but I told him you can not overdose on B12 and if it helps I will let you know. So since then he has been telling some of his other patients.

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So far I have not had anything for the neuropathy but am seeing the Neuro specialist on Monday . Have had all the tests , plus 6 B12 injections. Now my arms and hands are so painful I can hardly move them. They do not seem to be going numb like my feet and legs. Trying to get about and moving as much as possible. They have put me on methotrexate for 3 months trial , I am still waiting for surgery on my foot. Am so grateful for all your help everyone, trying to stay positive. Took 2 amitriptyline last night to get some sleep, it worked but feeling a bit foggy this morning!.

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My neurologist says her patients have had good luck with Low Dose Naltrexone (LDN). I have tried it for about 5 weeks so far, and my pain is about 50% less. I am pleased. It has to be compounded, but that isn't a problem. LDN is a bit controversial. You can read about it through a search engine, just enter neuropathy and Low Dose Naltrexone. In its low dose form, the Naltrexone serves a quite different purpose than in its regular dose to help people get off of opioids.

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I have found doing gymn and reducing my stress level helps

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