Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

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Hi there - are there any group meet ups in person please?

I am supporting someone who has FND and she would really like to meet other people who have this condition. I am just doing some investigating on her behalf....

I am supporting someone who has FND and she would really like to meet other peop...

•6 hours ago

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Autism Assessment

I have just been advised the Autism Assessments are 18 mths (if your lucky) to 2 years and on top of that the school are only assigned so many hours, so that...

I have just been advised the Autism Assessments are 18 mths (if your lucky) to 2...

•2 days ago

FND Awareness month

#fndawareness I just clicked on this and there are over 27k posts so far on Instagram, I really hope things change.

#fndawareness I just clicked on this and there are over 27k posts so far on Inst...

•2 days ago

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Baclofen?

My GP has offered me treatment with Baclofen…a muscle relaxer commonly used for MS. This would be to address widespread pain. It works with GABA receptors. Has...

My GP has offered me treatment with Baclofen…a muscle relaxer commonly used for ...

•6 days ago

temperature fluctuations

Hi Recent diagnosis of FND. I have had a problem with my body being very hot to touch with flu like feeling, shaking and all over body pain. My cheeks are...

Hi Recent diagnosis of FND. I have had a problem with my body being very hot t...

•6 days ago

The Stress System

Loved this article and its metaphors: The stress system is made up of multiple interconnected brain-body systems—the autonomic nervous system,...

Loved this article and its metaphors: The stress system is made up of multiple ...

•6 days ago

An Inspirational Story, full of Hope: Maureen's Story

Check it out at: https://www.instagram.com/reactivept/ This lady has had FND for 12 years, and she uses learn't techniques to help her stop her symptoms in...

Check it out at: https://www.instagram.com/reactivept/ This lady has had FND for...

•7 days ago

Evidence-Based Mind-Body Interventions for Children and Adolescents with Functional Neurological Disorder

The bit that caught my attention: Full resolution of FND symptoms occurs in 63%–95% of children if diagnosis and treatment are promptly delivered using a...

The bit that caught my attention: Full resolution of FND symptoms occurs in 63%...

•9 days ago

FND SUCKS

Hi I'm Debby and I'm in the USA in Utah. I have been dealing with constant pain all over, abdominal pain, constipation that lasted sometimes 17 days with no...

Hi I'm Debby and I'm in the USA in Utah. I have been dealing with constant pain...

•9 days ago

Hello

Hi there, this is my first post and I am not sure of where I should start. I feel very alone these days, I am always unedge when it comes to stress management...

Hi there, this is my first post and I am not sure of where I should start. I fee...

•10 days ago

Do you suffer from nf1 or 2

Good evening friends I was wondering if anyone suffers from the rare condition NF1 OR NF2 it would be lovely to chat to anyone who suffers from this...

Good evening friends I was wondering if anyone suffers from the rare condition...

•10 days ago

Therapist

Regarding my last post. I told my therapist what WE were going to talk about and the things that WE are going to deal with, and they all have to do with this...

Regarding my last post. I told my therapist what WE were going to talk about and...

•12 days ago

FND is NOT FAKING IT

Sharing this image of brain scans which shows what was happening in an FND patient's brain during symptoms (on the right), against the scan on the left where...

Sharing this image of brain scans which shows what was happening in an FND patie...

•12 days ago

Staying in rosa burden

I'm due to go to the Rosa Burden Centre hopefully in next few months, I'm wondering how a day to day goes and do we have separate rooms as I'm worried of...

I'm due to go to the Rosa Burden Centre hopefully in next few months, I'm wonder...

•13 days ago

Mad as Hell

Eventually had a letter following a telephone conversation with a Children's Psychiatrist. The letter said I diagnosed ASD - however, she suspected it and I...

Eventually had a letter following a telephone conversation with a Children's Psy...

•13 days ago

Feeling so fed up

I'm feeling so low I want answers to whats going on my stroke like symptoms are stopping me working as the care home doesn't know what's my diagnosis are to...

I'm feeling so low I want answers to whats going on my stroke like symptoms ar...

•14 days ago

Tingling

I recently have felt like drips of water are going down My legs ... like on my shin. I keep sinking, it's the dog's wet nose. But he's never in the room . can...

I recently have felt like drips of water are going down My legs ... like on my s...

•15 days ago

botox treatment

Does anybody have any experience of Botox injections for the treatment of TMJD? This has been suggested to me today by a health professional at my local...

Does anybody have any experience of Botox injections for the treatment of TMJD? ...

•15 days ago

New friends

Good morning everyone Since I joined the group I've had great support in a very short time, I would love to make new friends it doesn't matter were you live...

Good morning everyone Since I joined the group I've had great support in a ver...

•15 days ago

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FND .

Hi all Happy Easter. I was just wondering if anyone with FND suffers with shacking in sleep my wife tells me the bed moves it's just like I'm having a fit but...

Hi all Happy Easter. I was just wondering if anyone with FND suffers with shack...

•18 days ago

Brain Bytes Clinician Directory

Brain Bytes is Re-Active's membership for clinicians who want to learn and grow specifically in disorders like FND! Julie has already referred a couple of...

Brain Bytes is Re-Active's membership for clinicians who want to learn and grow ...

•18 days ago

Losing words

I've had FND since 2017, started slowly, lately my balance is worse plus speech more difficult. I'm not as bad as many who have this disorder, just worried...

I've had FND since 2017, started slowly, lately my balance is worse plus speech ...

•19 days ago

FEELING FED UP

Does anyone with FND feel that your head feels like it's not on your shoulders it's a strange feeling or should I say spaced out my wife asks me daily because...

Does anyone with FND feel that your head feels like it's not on your shoulders ...

•19 days ago

FND diagnosis

Hi Everyone I'm looking for some answers being has I can't get them from the hospital or doctors I suffer from Stroke like symptoms Dizziness Drooping eye...

Hi Everyone I'm looking for some answers being has I can't get them from the hos...

•21 days ago

newly diagnosed

my wife was diagnosed with FND a month ago after havens been ill for a few days before with bad abdominal pains (time of month) and feeling spaced out , long...

my wife was diagnosed with FND a month ago after havens been ill for a few days ...

•22 days ago

Worst Responses from Medical Professionals

Idk about you guys, but there are 2 main things that I hate hearing from medical professionals: 1) You're faking 2) Congratulations! Your tests came back...

Idk about you guys, but there are 2 main things that I hate hearing from medical...

•22 days ago

Staffordshire FND Support Groups

Looking to meetup with other FND diagnosed people for support and friendship and to most off all to help each other in particular the Stafford area,

Looking to meetup with other FND diagnosed people for support and friendship and...

•22 days ago

Molly Parkers Storu

An interview with Molly and Julie (Re-Active) sharing her journey towards recovery following a concussion and developing FND symptoms. A lot of hard work but...

An interview with Molly and Julie (Re-Active) sharing her journey towards recove...

•24 days ago

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FND help please

I’m 17 nearly 18 in a mounts and I have FND according to the neurologist, I have a 1 year old lab and was wondering if she could become an assistant dog or...

I’m 17 nearly 18 in a mounts and I have FND according to the neurologist, I have...

•26 days ago

Tingling, pins and needles and weakness worse when exercising?

Hi, i was diagnosed with FND recently after having tingling, pins and needles in my legs and feet. My right side is mostly effected and my right leg is weaker...

Hi, i was diagnosed with FND recently after having tingling, pins and needles in...

•27 days ago

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