My FND Recovery: I used to be... - Functional Neurol...

Functional Neurological Disorder - FND Hope

5,582 members2,909 posts

My FND Recovery

Grow123 profile image
8 Replies

I used to be completely debilitated by my FND. I felt isolated and alone. I couldn't drive. Couldn't work. Now I'm FND symptom free. I highly recommend The 12-week FNDcourage course that begins August 7th and is completely online. The course includes 12 webinars with an international expert on FND (webinars are recorded if you can't attend live). Afra Moenter, pHD has been treating FND for decades and has created a course and a community based on what she's learned. The course also includes 12 weeks of study groups- an hour each week to meet with others with FND and deepen into the healing work. FNDcourage is also hosting a retreat this September. Registration for both is open now and spots for the retreat are limited.

Written by
Grow123 profile image
Grow123
To view profiles and participate in discussions please or .
8 Replies
angel-7 profile image
angel-7

I am very happy for you. Thank you for your post.

Can you please tell how long you have been symptom free for? And if you don’t mind me asking, did you have fnd just once (for a long period of time)? Thank you

Seamer37 profile image
Seamer37

Can you do this from outside the US

Xccellent profile image
Xccellent in reply to Seamer37

Yes the website says its all online

Xccellent profile image
Xccellent

This sounds interesting. How did it help even though it is labelled as a course rather than a treatment? And if you don't mind me asking what form of FND did you have?

Grow123 profile image
Grow123 in reply to Xccellent

FND is the only condition known to be treated by information. I know when I got a proper diagnosis, (it was delivered compassionately and clearly) some of my symptoms dropped away from the diagnosis alone. The fear of the unknown was causing many of the involuntary shutters, jerks and dystonia. I guess that's why its labeled as a course, but is absolutely a treatment too. Through the course, I've learned to live life according to my nervous system and I'm able to do more and more (I got my ability to drive back approx 3 months ago).

My FND presented as seizures, drop attacks, memory issues, debilitating sensory sensitivities to light and noise, body split, cognition issues, bladder issues, bowel issues just to name a few. FND affects the vagus nerve which touches nearly every organ in the body. I now how to heal the vagus nerve (its taught in week two of the class).

I'm happy to answer any other questions you have.

Xccellent profile image
Xccellent in reply to Grow123

Thank you very much. My FND is more of an apathetic form rather than presented physically. Its more of a 'disconnect' between my physical, thinking and emotional functions. Reflexes are also very impaired, both physically and emotionally. So rather renders me somewhat out of sync with myself, but I am able to force my way through things, although with a significant amount of strain most of the day everyday. I've struggled for over 20 years this way, and only diagnosed a couple years ago, with no real help or actual categorisation of my condition. This is the thing that stresses me the most. So if this course would help with defining it to start with, yes, as you say, that would go a long way.

Xccellent profile image
Xccellent

Thank you very much. My FND is more of an apathetic form rather than presented physically. Its more of a 'disconnect' between my physical, thinking and emotional functions. Reflexes are also very impaired, both physically and emotionally. So rather renders me somewhat out of sync with myself, but I am able to force my way through things, although with a significant amount of strain most of the day everyday. I've struggled for over 20 years this way, and only diagnosed a couple years ago, with no real help or actual categorisation of my condition. This is the thing that stresses me the most. So if this course would help with defining it to start with, yes, as you say, that would go a long way.

LouBL0u profile image
LouBL0u

Hi Thanks for posting. The course looks great but costs. I appreciate that it has to but sadly that’s a barrier.

I found the video they have on their site really informative too and here’s the link

youtu.be/2h4oCfjqFRw

I’m currently accessing EMDR which has previously helped me to process. I’ve also been an in-patient at the Rosa Burden Centre in Bristol ( referral via GP) Their approach is multi-disciplinary and helped me a lot.

Good luck all, it’s a long journey!

You may also like...

Fnd recovery

anyone get fnd and then get better within months? I seem to be better this last couple of weeks....

So fed up with my FND

suppose of taking the fun out of everything. I hate my fnd it makes me so angry and no one seems to...

Update of my FND of 7 years

the moment on a boost of 50,000 IU a week for the next 6 weeks but we know that my body will become...

Covid 19 Vaccine brought on FND. My story

I rang an ambulance. I couldn't even walk to get in it. I spent another week on the stroke ward...

Could my FND actually be dopamine deficiency?

My neurologist has just diagnosed me as FND and has suggested psychotherapy. However, I feel certain