Many rare conditions are multi-system/multi-symptom and even conditions that are more straightforwards are often misdiagnosed as 'functional' (or whatever term is trending at the time). If you think you may have been misdiagnosed with 'FND', it's worth showing this to your doctor and asking them to reconsider your diagnosis and 'dare to think rare'.
I think that's a question for the admins or Hon Prof Stone. The UK NHS complaints 'procedure' should come with a government health warning. I guess you could contact the Parliamentary Health Service Ombudsperson but they were not deemed fit for purpose when I was invited to send a report to them. Things may have changed, tho'. Hope you're doing OK.
It may, but the response might be to diagnose you with 'litigation disorder' *Sigh*.I think the article in the BMJ by Hon Prof Stone et al makes it clear that everyone needs to understand the rationale for the dx. It's a bit of a mess tho' cos the people who control the narrative have now shifted the focus to 'internal inconsistencies' as being the 'hallmark' of FND without citing the origin of that hypothesis. I think Jon Stone's self help site was due for a reboot so I would expect to see the 'internal inconsistencies' deal as a banner headline there, when the reboot happens.
Again, I'd turn to the admins here for some answers.
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why are dr’s so quick to say you have fnd
FND Diagnosis and no critical illness payout! 😢
feeling od drooping water on skin
Don't give up hope everybody
