FND does not define me

[tryingtobehopeful]

Hello Everyone! Today I am feeling very hopeful and glad to be alive. It isn't always that way for me. How tragic that any one of us should feel that way, even for a day - that they do not wish to carry on. I just have to keep getting up, to thank God that i live each day, thank him for my family and friends. Sometimes that's all i can do, sometimes i can't even do that. that's ok because i will not let this define who i am. i am joyful, i will let my smile come through because that IS me. that is me... :0) Have a great Saturday to the best of your ability. Hugs.

[210272]

I hear you, tryingtobehopeful. Unfortunately having a dx of FND does define you as having a core psychiatric disorder in the minds of academics/medics. Sure, they don't look great when they do this and you look far better to me but I'm all done with their stuff.

I didn't know God was a bloke. Are you sure about that?

[tryingtobehopeful in reply to 210272]

I have been thinking about this all day today. I read about someone else's dr visit with another arrogant neurologist and it infuriates me. As I read about others and what they are experiencing, I realize how fortunate I am that my "mysterious illness" has been intermitten over the last twenty years. After going through tons of tests and seeing the look on so many doctor's faces, when they say everything is normal - I went off docs for years. But they have gotten much worse this time so i ventured out again.

I'm Bipolar, talk about a double dose of crazy, docs see me coming a mile away. Apparently they have a fancy new name that they slapped on me the minute i walked in the door. FND. and here i am.

So I have to stay hopeful, I can go dark quickly if i start down that other path.

God is my Abba Father that i am sure of. hugs.

[210272 in reply to tryingtobehopeful]

Here's what gets to me ... in papers about FND people write about 'personality disorders' rather than using terms like bi-polar which seems arrogant and out of date. An FND/conversion disorder diagnosis has to be made according to certain standards, they can't just label you with it. Love your positive attitude

[tryingtobehopeful in reply to 210272]

I’m a mess but I appreciate your kind words! :).

[tryingtobehopeful in reply to 210272]

Which is out of date bipolar or personality disorder? I’m an old lady so I’m not certain 👵🏼

[Hidden in reply to tryingtobehopeful]

They are different things. Bipolar Disorder is a recognised clinical disorder, which used to be known as Manic Depression.

Whereas a personality disorder refers to a group of psychiatric disorders which include paranoid schizophrenia, munchauzen’s, psychopathy and others.

I don’t know much about personality disorders but my aunt was diagnosed as a manic depressive many years ago and this is now classed as bipolar disorder - quite a common psychiatric condition relating to the clinical depression family.

I hope this helps.

[tryingtobehopeful in reply to Hidden]

It does thank you. I was originally diagnosed as manic depression 30 years ago which made sense to me. Then everyone was bipolar so I was that. :).

[Hidden in reply to tryingtobehopeful]

My aunt is 76 and feels just the same way! 😊

That said she also has skin cancer, angina and type 2 diabetes and no one has told her she has FND just because she’s bipolar. She would mince them!!

She went back packing around South America a few years ago by herself. She says she came home when she got bored of all the bumpy long bus journeys 😁

[tryingtobehopeful in reply to Hidden]

I keep telling my doctor that something is wrong. I thing MS or RA but they only give me FND with no tests except the squeeze my hand etc. Drive me crazy!!

[Hidden in reply to tryingtobehopeful]

Can’t type more it’s late and my fingers get very sore with neuropathy – not even a bit functional! Good night keep up the fight you’ll get there in the end!

[210272 in reply to tryingtobehopeful]

Referring to someone who has to co-exist with bi polar as having a 'personality disorder' is bonkers, disrespectful to you and out of date. Neuro diversity is fun

[tryingtobehopeful in reply to 210272]

I agree!