Lying on sofa lent over to pick tv remote from the floor right arm started shaking violently then lost strength in my arm which then meant I fell off the sofa with my body still shaking I was now stuck between the sofa and put up bed.
Now my legs give up no strength and I was unable to get up on my own, luckily Richard Harrison was in the house and he had to pull me up to half way up with help from Melanie I thought legs may come back but didn’t I had zero strength in my legs and I knew I was not going to get myself up and onto sofa so Richard had to pull me up and back onto sofa.
Since then suffered from shaking of legs and arms and then a weird felling I was shaking under my skin so nobody could see it but it is the weirdest feeling.
Once shaking had come to an end it leaves me absolutely knackered like I’ve just done a marathon. Feels like my body is slowly shutting down and that my arms and legs are slowly getting worse causing me to be baby like when they try to start walking at the beginning of life feels like I’m heading for fight to be able to try and keep arms and legs going for as long as possible. We will see how long it will be until legs lose strength and never come back which I don’t know how I would handle it.
My Wife has progressive MS as well so she is also going through problems with her legs etc and I always said if it gets to where you cannot walk anymore I will be there to help you now I feel inadequate as it may be me first unable to walk and I won’t be any use just a a shell of a body with nothing working properly I’m only 55 supposed to be time of enjoying yourself and do the things you always wanted to do when kids are grown up and I won’t be able too. What did we do in life to deserve this Me with FND and Wife with progressive MS.