Just an update and multi-diagnosis

[acalandra995]

I was recenty hospitalized for two weeks and was told it was FND after a stomach virus. However, I had my follow up Friday and he thinks there is a multi diagnosis here and I am will be seeing neurologist who focus is gearded towards a auto immune and ms.

My apts are 6 hour commutes as I live in the middle of no where, but I have learned to keep advocating and doing what is best.

If this helps anyone, please feel free to reach out.

Best!

[lily82]

What symptoms did you have?

I was initially diagnosed with conversion disorder/ FND but I now have the correct diagnosis of a chronic brain infection.

[acalandra995 in reply to lily82]

Oh wow. How was the chronic brain infection diagnosed? And a lot of tingling and numbness in my feet and legs, loss of vision over the year, and a balance disorder that has appeared within the year. Then suddenly, numbness and weakness. I have no reflexes in my feet. And tingling in my face.

[lily82 in reply to acalandra995]

By blood test. NMDA receptor encephalitis. I paid privately for it. Because no doctor would listen to me or allow a second opinion, I had to pay myself for investigations. I'm now waiting to see a specialist neurologist. I am livid about it.

I also had Rheumatic Fever causing Sydenham's Chorea.

So I had 2 brain infections that were misdiagnosed. This was 5 years ago, and only recently got the correct diagnosis.

[Keeponfighting in reply to lily82]

Hi Lily82

Which private hospital did you go to get your diagnosis?

[lily82 in reply to Keeponfighting]

I technically got the diagnosis on the NHS. But I did the blood tests in Spire.

[Keeponfighting in reply to lily82]

Thank you

[spall36]

What hospital you at. And what’s the auto immune disease you have. I have similar issues. Been told it’s FND however some doctors have said a multi diagnosis. Then a grumpy doctor took over and now they have all shut down on me and said it’s fnd. They make out it’s in your bloody head though.