Some initial thoughts (and a bit of a rant) on receiving this diagnosis.
I don't mean to offend anyone and am having a perfectly natural reaction to what is essentially being told 'there is nothing we can do, live with your pain' and basically wait for ever to get a dubious bit of help and validation. (Which may or may not help.)
Firstly, I think it is more comfortable for professionals to label people with FND than admit they dont know. It is lazy, patriarchal and egotistical. After all it's origins go back to Hippocrates, Freud, 'hysteria' and Conversion Disorder. (I'm surprised no one has been asked if they're guilty of sinning, or easily influenced bu the supernatural, particularly women.)
Secondly, I shudder at the amount of people being added to the FND Facebook groups daily. It seems to me that people in our society are becoming sicker and there are more and more medically unexplained symptoms. (Even if FND is supposedly different and is meant to be diagnosed on positive signs.)
Thirdly, here in the UK, I find it very worrying that people are clamouring to see one ot two named specialists in this condition therefore making already ridiculous waiting lists even more insane. Why aren't more young neurologists training up and becoming specialists in FND if it is a real condition? If there is so much cutting edge research taking place, why are there not more neurologists interested in this condition and available for us to see?
Instead people are pointed to other helpless and vulnerable people for 'peer to peer support'. While I understand that identification with others is valuable, from what I see there are hundreds of people in the UK not being heard, taken seriously or receiving help and living with shocking pain and disability. It's a national disgrace.
For those that have felt the benefits of having this as a diagnosis, I wish you all the best. I'm envious of the comfort it brings you. Personally speaking, I reject this as a Dustbin Diagnosis, maybe that will change.
Thanks for reading. Opinions welcomed.
Mic in Brighton (frowning)