I have fnd and fibromyalgia - Functional Neurol...

Functional Neurological Disorder - FND Hope

5,581 members2,909 posts

I have fnd and fibromyalgia

Netto profile image
2 Replies

I have had fibromyalgia for nearly 5 years I got diagnosed fnd just 7 mouths ago I started not been able to walk stright as my gate was bent to one said and I started to get movements and a lot of spasms been to see a neurosy and she said it was my body that was doing it not my brain when my body gets tired witch is a lot of the time i start to spams more i do a lot of mindfulness and that is what helps me any body no of some think else that might help

Written by
Netto profile image
Netto
To view profiles and participate in discussions please or .
2 Replies
Lucy-15 profile image
Lucy-15

Morning ....my gait also worsens greatly to the point of complete immobility if I don’t rest ...expect you’ve heard of ‘pacing’ !.....

I know now that if I do all possible to keep to max of 2k steps each day , ( just keep an eye on app on my phone..not obsessively tho )...if I go much over this I’m house bound the next day.....it’s tricky of course

Also, I try to avoid any slopes ...not easy in hilly Brighton!....this way my lest leg weakness, limp, muscle spasms, foot cramp etc don’t get to ‘crisis’ point too often.

I find my walking improves when distracted, when chatting to a friend, or I look at the architecture of buildings, easy as I walk so slow 🙄.....if limp gets bad I STOP... sway a little from side to side and re start with a wide stance.....biggest lesson I leant from my fab neuro Physio was ‘ rest BEFORE you think you need to’........ helpful I have lots of cafes near me too......anyway we are all different , but hope something here helps a little?

Take care Lucy in Brighton

Netto profile image
Netto in reply to Lucy-15

Thank you x

You may also like...

Hi I am CaptainSafetyBake and I have FND

Then I found a doctor who told me about FND and told me my movements seem to be this condition.

Do i have fnd

just last week i started shaking in my left hand but at its worst it has been my whole body and...

I have been told by a Neurologist I have NES, I believe I have FND, Help!

living hard and he still said No. He said this was happening because I do not get 'Stressed enough'...

Is it fnd or am I going mad

lying down and I started getting pins and needles in one side of my face that was the start than...

How can this be FND when I have a positive Babinski reflex?

I am newly diagnosed with FND - as a diagnosis of exclusion rather than with positive signs. Grrrr.