Burning in feet.: Hi everyone! The past... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Burning in feet.

LEEJUNFAN profile image
15 Replies

Hi everyone!

The past few days I've had a burning sensation in both feet.

I've had FND since 2012 but this burning sensation is new to me.

Anyone else have this sensation?

Best wishes to you all!

Kim xx😊

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LEEJUNFAN profile image
LEEJUNFAN
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15 Replies
Loupey profile image
Loupey

Hi, yes I get the same in ny hand and feet and lips. This is a new symptom to me to from about 3 year ago. Comes and goes though in flares. Does yours do the same? Come and go?

Lou

LEEJUNFAN profile image
LEEJUNFAN in reply to Loupey

Hi Lou,

Yes it does come and go and I get it in my knees as well.

Started last week.

Many thanks

Kim😊

Loupey profile image
Loupey in reply to LEEJUNFAN

It's super uncomfortable isn't it! I had it all day Saturday then it just went Saturday evening! When I first started getting it I thought it was just swelling but it's got worse and feels like burning now. Can last days or just hours! If you find anything that relieves it let me know xx

Loupey profile image
Loupey in reply to Loupey

Can ask what other symptoms do you have and what symptoms did you start with? Xx

dbar126 profile image
dbar126 in reply to Loupey

Hi I've had this feeling on and off for 2 years. The burning is so bad at times I literally sit on a chair with my feet in a bucket of ice water. Its the only thing that brought me relief. I know this isn't form or long lasting relief but works at the time.

Loupey profile image
Loupey in reply to dbar126

I did something similar at the weekend when I went to my parents and found relief putting my hands on their cold stone kitchen unit! I dont know if it's just me but I do find it can be brought on if I eat a lot of sugar or chocolate at night and sometimes alcohol, I then wake up with this burning. It's almost always starts when I wake up but have gone to bed feeling ok. Pleased to have found others with similar experiences :)

LEEJUNFAN profile image
LEEJUNFAN

Hi Lou,

I collapsed in 2012 and my right leg went into Spasm which put me into a wheelchair for 4 months.

Seen the Neurologist who was very thorough with all his tests and was told I had FND which made me lose my job and most of my independence.

I had physio and had to wear leg braces which I still have and I get many symptoms from eye spasms, hand spasms etc and I just have to take one day at a time now.

I'm on Baclofen to help my muscle spasms but this FND leaves you drained due to it's unpredictability.

Try to find anything that relaxes you if you can and we tend to go to the Countryside often by bus as it gives us a sense of peace.

My best wishes to you.

Kim 😊

Loupey profile image
Loupey in reply to LEEJUNFAN

Has baclofen helped the spasms? My newest symptom is twitching all over my body, literally everywhere. People don't seem to notice it unless it's a big one and it twists my head or arm but it's so uncomfortable.

LEEJUNFAN profile image
LEEJUNFAN in reply to Loupey

Hi Lou,

I'm on 10mg, twice daily and yes, it does relax my leg spasm.

I've had the neck spasm and twisting, very uncomfortable.

😊 xx

DMA1664 profile image
DMA1664

Yes, I to have the burning pins and needles type feeling in my feet. I wake pretty much most mornings with the same or after I've walked for a while.

boazk profile image
boazk

yes i have had that. i was at a wedding when it happened. it was awful

this is one of the rarest symptoms i've ever had. i have only experienced it around 4 times

123lisa profile image
123lisa

Hiya yes I get random burning sensation in my feet very strange not all the time but when it happens its like standing on hot coals and its really sensitive to touch I get it in my legs to x

DMA1664 profile image
DMA1664

Anyone have any ideas what it is or had anything explained by the neurologist?

marky-50 profile image
marky-50

I have the same problem as well in both knees and feet most of the time.I also get tired and get tingilling in my head which i can feel going to my feet.I also get very tired and weak as i am trying to get myself up and about not seating on my bum all day.

Blue80 profile image
Blue80

Hi, I never had this until last month. I walked from down the road home I was in the phone because when I don't feel good I try and take my mind off it so rang someone. As I started to get close to home the top of my foot and shin started to feel hot like it was burning, my cousin laughed and said it's because you don't walk anywhere. As I got in and sat down I made my daughter feel my foot and leg wanting reassurance it wasn't in my head now I've experienced another new symptom, something new to deal with.

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