I changed deodorant. Now using "community forum fresh scent" to get my act together. Smell better now... maybe.
Family forks out $705 USD every month just for right to get to be seen by doctor here and pay co-pays and deductibles that reset back to zero every January 1st.
It does limit what I can get done. It will not go on much longer. Have to have roof and food and clothes first.
So, I use my new fresh scent to continue seeking answers by promoting research. If there is a single doctor out there with an answer for me and daughter, it would be by luck of winning lottery that we would have funds to find them because otherwise, would be living on streets of Seattle.
Have to have research for all. Want no one left out. Must have way for people to receive proper diagnosis and care.
Ronwyn, I think what you say is true. We stay together here.
Best today.
Bit worse off physically but much better because of you folks.
Remember to search, amidst the hullabaloo, for that still small voice of calm. Share your burden with the one whose yoke is light and seek his rest.
I was much inspired in my worst times by the story of a bedridden ME 25%er (the critically ill group) who would use her days to intercede for those whose names were pinned up on her bedside wall....
Do not overstretch yourself - remember we are all here and can each only do a little.
Being in the over 60 group but not yet to Medicare, this is scary time. Not for me, but for family. My only concern how to help them for their future. It never was about how many doctors I could see. It was all about getting someone to pay attention to the problem here. When you have children involved, you step back and think about what to do. I do only thing I can. I put my life out there for her. If they can learn just one thing from what happened to me and use it to help her then something went right.
So I devoted life to waving hand in the air for help. Answers will come I thought. Life renews.
Now God has brought me to this community. I see the pain and loss that others have. I am strengthened to extend my efforts to wave my hands and everything else in air and shout loudly for science to look over here at big group of people who have no answers either.
This is a hard fight. But each day more people join the chorus not to tear down others but to unite in moving forward what has been accomplished by those who have already contributed .
I can no longer survive without my ties to all of you. This community is all my family and I have left. USA now says everybody on their on now. Lousy timing in my opinion.
You inspire. Time is short. Work is endless. There is no despair because you offer words of comfort, hope and peace.
God Bless you and all who touch our lives. We will find answers for all because that is right thing to do.
Love to you and your wonderful family Dan, you are an inspiration even when your obviously unwell, struggling yourself and worrying like all of us about bills and debt piling up. Proud of you, you still keep going not just for you and your family but also for us on here you Class as family too, when we are at our lowest your here for us, that is more then most of us have in our lives through lack of care, understanding and plain old humanity, I'm just so glad I found you, this website and the wonderful people on here. Hope your feeling a bit better today, love ❤️ to you and yours. Lisa. Xxx
Ps it's a good day when I remember to put my deodorant on, heh heh. Xxxx
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\"I know you wanna leave me but I refuse to let you go...\"
never felt so bad
STILL GET SYMPTOMS AFTER ALL THESE YEARS
Hi guys update that i promised
