Campaign for a better name
I think it's time FND is renamed , I believe we shouldn't be charictorised as mental illness . Why is it we all seem to have simalar symptoms , why does our speech come out sounding the same , why do we all get fatigued, why does our left side have worse pain and weakness.
I think it's time we all stand up together and shake my the medical researchers to do better research on us , we need to be monitored with brainwave electircal night and day whilst in a relapse to see how our brain run to check the electrical pulses in the brain..
I've had enough of being sick and no help and def have not gotten better only worse.
If it is in my head WHY wasn't I CURED as soon as the neurologist said it was all in my head sorry that's not good enough for me anymore.
I'm going to do all I can to try to prove we are realy sick and WE all need help