Lack of action

[Cintya1994]

Hello, my name is Cintya

It is just me, or do we all feel that there is a lack of support. I went to the hospital and the doctors that don't know what is FND

[kev60]

Hi, I had a bad reaction to Gabapentin which I was taking for nerve pain only had it for 5 days and all of a sudden had problems walking ,talking and thinking. I was in work at the time and it was deemed to dangerous to carry on as I worked in the flat glass trade(windows). went to my GP and they sent me to A&E that hospital then blue lighted me to another hospital as they thought i was having a stroke, three days later discharged with a neurology appointment 6 months down the line. I went back to my GP and they help me get and emergency appointment within a week . but it took numerous tests and bloods to confirm FND at about 17 months. It can be very frustrating as everything is done slowly and all the tests found other things wrong in my case copd(emphysema), gord and spinal problems. I have not worked since June 2018 (tried to get job in supermarket but i am to unsteady). There appears to be alot of research and I have been on 2 trials unfortunatley Covid put a stop to them. I had 2 neurologist and a neurophysio and at the end of 2020 they decided there was nothing more they can do, so I feel like a fish out of water. all i can do now is badger my GP to get any help i can get. I have a physical side to my FND and find I walk into things(doors etc) and so medics know something is wrong , but as you say not all doctors know what it is , i find i have to tell them from what i have learnt. I am now under chest clinic as they think i may have long covid but they are still learning about this as well. I hope you find help wherever you are in the world good luck

[Cintya1994 in reply to kev60]

Thank you Kevin, for your kindly words. Al the best for you