Breaking news form ASH conference: looks like Ibrutinib May be better than FCR for some patients
#ASH18 #LBA | A Randomized Phase III Study of Ibrutinib ( PCI-32765)-Based Therapy Vs. Standard Fludarabine, Cyclophosphamide, and Rituximab ...
Chemo-Free Treatment Best Option for CLL Patients Under 70
There is good news in the advancement of chemo-free approaches to managing chronic lymphocytic leukemia, and I am thrilled to share it with y...
Experience with Fludarabine & Rituximab?
Hi, My mom ( now 62 yrs old ) was diagnosed with CLL about 5+ yrs ago, and her doctor recently told her that she needs to begin treatment. Wo...
MF transplant update - discharged from BMT unit and back home
Hi All, delighted to report that I am back home from my local BMT unit and will now be treated as an outpatient. Still along way to go....
New to Site Imbruvica & Rituxan how are they tolerated together.
I’m new to the site but not new to CLL. I was diagnosed in 2003 and was watch and wait....
TIL Treatment underway at last!
It's been a wild ride, but this morning we got the call to come be admitted to VCU for the TIL study. We are so grateful to be here....
Use of MRD Status Following Obinutuzumab/Ibrutinib to Guide Subsequent Intensification of Therapy in CLL
01% were treated with 6 months of ibrutinib; whereas those achieving a partial response ( PR ), or a CR and bone marrow MRD greater than or e...
Greetings from Chaya Venkat <firstname.lastname@example.org>
As you knew, we planned to keep all three of our websites ( CLL Topics flagship site, Updates and Harvey’s Journal ) up and running for the f...
Novel Combos Are Shaking Up the CLL Landscape but FCR still has its place
They designed a phase II study testing the combination of ibrutinib, fludarabine, cyclophosphamide, and obinutuzumab ( iFCG ) for the frontli...
CAR-T update and more
Writing this with fludarabine and cyclophosphamide running through my PICC line to make room for the CAR-T cells on March 22. I have tried to...
CLL Tracker - Patient Data
In 2011 CLL Tracker clltracker.co.uk was introduced to share patient specific data on their CLL experiences. The website can be found at ...
FLAIR Trial 2018 update
This trial is comparing ibrutinib alongside rituximab with fludarabine, cyclophosphamide, rituximab and venetoclax for chronic lymphocytic le...
I was diagnosed with Pulse Tinnitus 2 years ago. I have the sensation of hearing the whoosh sound of blood in my head all the time, it’s wors...
Just finished FIRST round FCR - what will happen next?
I just finished three days of FCR infusion. They waited for the third day to infuse the Rituximab, but I had Cyclophosphamide and Fludarabine...
Antioxidants: good, bad or indifferent...
Resveratrol a stilbenoids, has been looked at in CLL, and seems to have some sinergy with fludarabine......
Prof Fegan talks from ASH 2018 | Telomere length can predict the outcome of FCR chemoimmunotherapy in CLL
We are in an era of fast evolving blood cancer treatment, novel non chemo therapies and new combinations offer the potential for individualis...
Hi, I'm writing this for my dad he's had CLL 8 years and in the past year he's started developing symptoms ( swollen nodes in the neck ) his ...
CLL Blood Tests: Immunoglobulin, Complete Blood Counts, Platelets and More- Patient Power Video- June 29, 2012
So I would want to know the absolute lymphocyte count, and the thing that I would be concerned about on that is how fast it is doubling. You ...
CLL 11q del, CD38+ unmutated and my bumpy ride during the FCR treatment.
After a reminder today of a member, I simply steal the time in my hectical life to finally write some, as promised earlier, about my treatmen...
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