Please Join Our Patient Power Community or Follo... - Fight MPN

Fight MPN

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Please Join Our Patient Power Community or Follow On Facebook

tclementi profile image
8 Replies

Hello everyone-

In an effort to streamline our web presence, we will no longer be moderating this page. To still connect with us, you can join our free Patient Power community here: patientpower.info/user/regi... or follow us on Facebook here: facebook.com/PatientPower.I...

Wishing you the best of health,

The Patient Power Team

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tclementi profile image
tclementi
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8 Replies
Glagirl profile image
Glagirl

Sorry I don’t understand. You are deleting all the questions and answers gathered via this website?

tclementi profile image
tclementi in reply to Glagirl

Hi yes, we will be deleting this page because we don't have the bandwidth to manage another platform at this time. You can go through and screenshot the questions and answers you'd like to save before we delete it though!

Glagirl profile image
Glagirl

I’ve just looked at the Patient Power page and can see nothing about MPN’s.

tclementi profile image
tclementi in reply to Glagirl

Hi there- our MPN healthcenter is here: patientpower.info/myeloprol...

2Entropy profile image
2Entropy

It is very disappointing that the only resource is to force those who are scared, hurting and in need of answers to be part of Facebook. Their view of privacy has been proven to be lacking any number of times so sharing informational questions on a FB page could be used by the next hack resulting our personal health issues being exposed for illicit purposes by the hacker down the road. b. harden

tclementi profile image
tclementi in reply to 2Entropy

Hi there- as piggie50 says below, you don't have to join Facebook. You can visit our site directly: patientpower.info/myeloprol...

piggie50 profile image
piggie50

You don’t need to join Facebook, you can go direct to the patient power website.

MaddieHU profile image
MaddieHUHealthUnlocked

Hi all, I just wanted to confirm that this community will remain open. Patient Power are no longer able to continue moderating this community so HealthUnlocked will be taking over to allow you all to continue sharing support and advice through this platform.

For more information, please see my recent post: healthunlocked.com/p2mpname...