Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

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PIP higher rate

Hello, I had a letter at the end of March to say I’d be receiving a bit more money from 8th April from my PIP . I was still paid the same amount even though...

Hello, I had a letter at the end of March to say I’d be receiving a bit more m...

Marleymoo13

•4 hours ago

1 Reply

Costochondritis in fibromyalgia

This can be so painful and scary

Tommygurl

•8 hours ago

2 Replies

Covid with FM and returning to work

Good morning, hope your all having a better day. I have Fibromyalgia and long Covid and want to return to work? I have been advised by employer I need to do...

Good morning, hope your all having a better day. I have Fibromyalgia and long C...

Geeforce99

•11 hours ago

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Pip call

Dwp just called me regarding my mandatory reconsideration. At no point did they say it was to negotiate my claim, or tell me how much I would receive. But now...

Dwp just called me regarding my mandatory reconsideration. At no point did they ...

Spectralvix

•1 day ago

12 Replies

Getting a job with fibro, college and dont know what to do...

Hi hope you are alright, i just would like some advice about working, someone in my family made a conment that really upset me about working it made me feel...

Hi hope you are alright, i just would like some advice about working, someone in...

fibrogirl41

•1 day ago

15 Replies

Nhs I’ll health retirement

hi all, I’m on the way to the site after 20 years of my NHS job have been dismissed on medical grounds due to the main one being fibromyalgia. I have applied...

hi all, I’m on the way to the site after 20 years of my NHS job have been dismi...

10x10

•1 day ago

4 Replies

Yeah Yeah

Good morning My Fibro Family 0400 in the morning, Can't sleep for toffee, (Hmmmm I probably could actually, And that right there is the reason I'm larger...

Good morning My Fibro Family 0400 in the morning, Can't sleep for toffee, (H...

Debsdelight72

•2 days ago

4 Replies

bowel tests and laxatives

hi, I’ve got a proctogram, endo anal / rectal scan and transit study on the 8th June. The instructions on letter were vague and i was told to read enclosed...

hi, I’ve got a proctogram, endo anal / rectal scan and transit study on the 8th ...

Beakybird58

•2 days ago

4 Replies

heat pads

hi everyone Newbie here. I’ve got fibromyalgia… it runs in my family I just wanted to ask about the rules of heating pads in the work place. My daughter is...

hi everyone Newbie here. I’ve got fibromyalgia… it runs in my family I just ...

Hidden

•2 days ago

5 Replies

PIP telephone consultation

hi I have a telephone consultation in a couple of weeks. I’m a bit nervous about this. Can anyone please advise or help with what to expect., and how long it...

hi I have a telephone consultation in a couple of weeks. I’m a bit nervous abou...

Off7

•2 days ago

5 Replies

So much pain and more

Is everyone of our fibro friends suffering more with this horrible weather because I seem to be having an awful lot of flare ups, I can't seem to go out in my...

Is everyone of our fibro friends suffering more with this horrible weather becau...

Tillytrots

•3 days ago

11 Replies

Plans to help me and support,

Hi hope you are all okay, im wondering if people have had good support from their doctors re fibro, plans to help, therapies, hydro therapys, more physio or...

Hi hope you are all okay, im wondering if people have had good support from thei...

fibrogirl41

•3 days ago

8 Replies

Update on pain management appointment

This is the 3rd time of trying to post this it keeps saying refresh when I do my message has gone 🤷‍♀️😡I was actually in a flare up when I saw the doctor...

This is the 3rd time of trying to post this it keeps saying refresh when I do my...

Tommygurl

•3 days ago

11 Replies

Name our greylag chick !

No idea of the sex but they're super cute and quite the fighter.They've learned to eat seed and split corn🤗😃 They have been blown into parents legs awww....

No idea of the sex but they're super cute and quite the fighter.They've learned ...

Smilesalot

•3 days ago

1 Reply

Back and leg pain

My usual symptoms of fibromyalgia is fatigue, loss of energy, horrible tingling / burning sensation (mainly on face and scalp) and tender joints. However I am...

My usual symptoms of fibromyalgia is fatigue, loss of energy, horrible tingling ...

Ninapod

•3 days ago

2 Replies

Dizziness

Hi guys my first post on here I love this page it really good to know you guys I'm just wondering if anybody has experienced dizziness when they are either...

Hi guys my first post on here I love this page it really good to know you guys I...

Dolly6789

•3 days ago

18 Replies

Losing weight with fibromyalgia..

Hi hope you are okay, since ive had fibro ive put on weight, i used to be slim when i first had it now im fat and i dont like it. It makes me feel down and i...

Hi hope you are okay, since ive had fibro ive put on weight, i used to be slim w...

fibrogirl41

•4 days ago

69 Replies

Lovely

Hubby got me into garden to see what my plants are doing, My heart flips when I see what's going out there, My wisteria has got loads of buds ready to...

Hubby got me into garden to see what my plants are doing, My heart flips when I...

Debsdelight72

•5 days ago

11 Replies

Feeling guilty

Hi all , well what a beautiful day it's been here In the Welsh valleys .Earlier I was sat in the garden with my dog just lying on the floor looking up at the...

Hi all , well what a beautiful day it's been here In the Welsh valleys .Earlier ...

Mrdiagnosis

•5 days ago

10 Replies

College fees and feelung down sometimes...

Hi, hope you are ok, as you know i miss working at cranfield, and i get fed up sometimes. I have passed my cybersecurity course which im happy about but ive...

Hi, hope you are ok, as you know i miss working at cranfield, and i get fed up s...

fibrogirl41

•5 days ago

8 Replies

Wheelchair

Hi, I was diagnosed with fibromyalgia in 2017 and have been getting worse. I cannot walk round town without being in considerable pain and the pain doesn't...

Hi, I was diagnosed with fibromyalgia in 2017 and have been getting worse. I can...

Tisticenby

•5 days ago

60 Replies

Fibromyalgia Strange Nasal Smells

Hi......having strange smells all of a sudden like a hospital antiseptic crossed with the smell of like clothes softener i.e. comfort or lenor...

Hi......having strange smells all of a sudden like a hospital antiseptic crossed...

Fibro1966

•5 days ago

6 Replies

lupus or fibromyalgia?

hi can anyone advise please a few times a day or at night I get random crushing pains across chest or like a vice across arms crushing them into shoulders...

hi can anyone advise please a few times a day or at night I get random crushing...

Geeforce99

•5 days ago

8 Replies

breathless

hi I got diagnosed with fibromyalgia recently. Lately I have been getting chest pain and shortness of breath, does anyone else get this and know the reason...

hi I got diagnosed with fibromyalgia recently. Lately I have been getting chest...

Mark1973

•6 days ago

7 Replies

Lonliness

How do you deal with night time lonliness? I have many distractions but still, I've not seen anyone in over a week well just today. Makes my anxiety worse. 🦋

How do you deal with night time lonliness? I have many distractions but still, I...

Sleepyhead_

•6 days ago

6 Replies

sibling needs more help than I’m able to give

my brother needs help with dr appointments and shopping, but I have Fibromyalgia and don’t feel 100% all the time. Other family who work, seem very judgmental,...

my brother needs help with dr appointments and shopping, but I have Fibromyalgia...

RinaRina

•6 days ago

3 Replies

Tribunal

Lies were also told about me. The woman who assessed me said that I visited my mother 3 times a week. My mother had passed away more than 5 years before the...

Lies were also told about me. The woman who assessed me said that I visited my ...

dennydee

•6 days ago

1 Reply

Id like to announce my 1st goslings in my garden😁😁😁😁😊

I truly hope they survive the attacks of the swans😭.But Chicks yey 😁. There will be loads soon😊 They're at my back door. Fed them seed. As you can tell I'm...

I truly hope they survive the attacks of the swans😭.But Chicks yey 😁. There wi...

Smilesalot

•6 days ago

47 Replies

Appeal

Morning all.Didnt get any response last time so thought id give it a go again.To anyone that has appealed to tribunal for pip.... How long does the process...

Morning all.Didnt get any response last time so thought id give it a go again.To...

Nahr79

•6 days ago

11 Replies

tribunal lies

hello everyone. I’m diagnosed Fibro/copd which trigger each other daily , also adhd and bpd. On my 3rd attempt at claiming pip after going through the 3...

hello everyone. I’m diagnosed Fibro/copd which trigger each other daily , also a...

Robdickson

•7 days ago

18 Replies

Write a post or ask a question

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

PIP higher rate

Costochondritis in fibromyalgia

Covid with FM and returning to work

Pip call

Getting a job with fibro, college and dont know what to do...

Nhs I’ll health retirement

Yeah Yeah

bowel tests and laxatives

heat pads

PIP telephone consultation

So much pain and more

Plans to help me and support,

Update on pain management appointment

Name our greylag chick !

Back and leg pain

Dizziness

Losing weight with fibromyalgia..

Lovely

Feeling guilty

College fees and feelung down sometimes...

Wheelchair

Fibromyalgia Strange Nasal Smells

lupus or fibromyalgia?

breathless

Lonliness

sibling needs more help than I’m able to give

Tribunal

Id like to announce my 1st goslings in my garden😁😁😁😁😊

Appeal

tribunal lies

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