Hi, new here so thought I would write about me. I keep a sort of daily diary of symptoms and what I think are the causes and effects, on the notes section on my mobile phone. t~ah way, when I go to the GP I can refer to the notes. I was diagnosed abut four or five yrs ago after many, many trips to the GP trying to insist that all my aches and pains and tiredness were connected. In the end my optician referred ne to the eye clinic for dry eye syndrme and the consultant there referred me to rheumatology therefore bypassing the GP. Recently my dentist sent me to the maxo facillary dept for jaw and burnng mouth pain.
If you have a GP who is reluctant then you could try this method as I find these other specialists are often more kind and open to ideas.
So, I have fibro, dry eye syndrome, arthritis, and possibly oral lichen planus.
Amytriptiline is horrible so ditched that. Use a combination of gabapentin , cocodamol, aspirin, citalipram, blood pressure med,tow different eye drops and gel. Back to maxo facillary next week to find out result of very painful lip and mouth biopsies.
Have been tryomg t get them to test for sjorgrens and the MF guy has done this now so waiting to see. This is from dentist ref not GP.
Do not work except couple of little cleaning jobs for old dears. Hard to get up on a monday to do them but I make it and it always makes me feel exhausted but happy