alternativeapproaches?: have people... - Fibromyalgia Acti...

Fibromyalgia Action UK

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alternativeapproaches?

durga profile image
19 Replies

have people used meditation, hypnosis or yoga, I am wondering id it would help in the long run. I would be interested to know of any therapy that has proved helpful

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durga profile image
durga
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19 Replies

I have tried yoga and many alternative treatments to no avail for me.. But I do have 4 free relax and sleep well and peace apps on my iPad , all free to download and I do listen to them at night if I can't sleep or during the day I listen to the peace one, very relaxing

Hope you find something that suits you, oh and Mdaisy suggested cranberries and cherries as being of benefit to fibro and arthritis and as I have both I am giving those a go and even if they don't work they are very yummy :)

VG x

I find thinking about my diet, and taking supplements where necessary are really helpful approaches to maintaining energy, and minimising brain fog. Since I made a big change in that direction middle of last year, things have been better. Like VG I use free apps on my i-pad if I need help to get to sleep. I would like to do more in the way of relaxation / meditation / yoga but not managed to build it into my life yet.

Do let us know how you get on if you start something new.

Kaz

x

phlebo123 profile image
phlebo123

I started going to hath a yoga classes (hath a is the gentleman form of yoga) about 7 years ago (not long after my fibromyalgia diagnosis). I go for 90minutes once a week. The teacher is aware of fibromyalgia and does not push to hard. I especially enjoy the 15 minutes relaxation session at the end. I now try to find time to do about 15 minutes yoga at home each evening to get rid of the days stresses. I also find a short walk with the dog helps to "clear my head"and gather my thoughts. :) xx

durga profile image
durga in reply to phlebo123

thank you

phlebo123 profile image
phlebo123

Sorry that should be the most gentle form of yoga and not gentleman. --- that's predictive text for you!!!

summerlite profile image
summerlite

Hello. I've just started working with a master chiropractor. She has already found me magnesium deficient, and I'm taking a supplement to replenish my body. She has also begun using accupuncture on trigger points on my shoulders, with amazing results. I am also chronically deficient in Vit D,and have blood tests regularly and take a booster every month. Fibro is such a subjective condition, there's no telling if what's working for me would work for another fibromite, but it's worth looking into mag and vit d. Good luck S x

durga profile image
durga in reply to summerlite

thanks, i heard about magnesium deficiency, but don't think I have that, I take vit D in the winter, but found accupuncture too much. i got really sensitive to the needles, i couldn't bear to be touched when they were in, so i gave that up. But I do think relaxation and meditation are useful

LindseyMid profile image
LindseyMid

You may be interested in the newly published 'Fibro & Complementary Therapies' factsheet:

fibroaction.org/Pages/Compl...

It doesn't include exercise or stress management based therapies as these will be included in other factsheets. Because of the over-stimulation of the autonomic nervous system that is such an important factor with Fibro, anything you can do to reduce this may help you. Some people do find yoga helpful, but it is good to make sure that hypermobility has been properly checked for before trying yoga - hypermobility is considered a risk factor for Fibro, so they often go together and if you don't know you are hypermobile, you could injure yourself.

durga profile image
durga in reply to LindseyMid

i have never even heard of hypermobile, what does it mean?

LindseyMid profile image
LindseyMid in reply to durga

Hypermobility means that your joints have a greater range of movement, because the collagen in your body is not as strong as would be considered typical. Many people are hypermobile with no problem or only occasional issues. However, some people have symptoms with their hypermobility and this is when it is considered Hypermobility Syndrome.

See here for more info:

hypermobility.org/whatishms...

durga profile image
durga in reply to LindseyMid

did that used to be called double jointed?

mijila profile image
mijila

Hi Durga.I'm a meditation teacher and Reiki Master and I also have Fibromyalgia and have found both to be very useful.Unfortunately not a cure but just getting that inner peace and relaxation helps with the sleep deprivation.Im of the mind that if you can get a good nights sleep you can tackle most things in the day.I was thinking of trying some acupuncture too.I hope you find something that helps you and think it's great to try alternative therapies alongside conventional medicine.Good luck.Jan xx

durga profile image
durga

i sleep at least 12 hrs a night, i always wake up feeling exhausted and in pain, i think it would be better if i spent less time in bed (for my pain), but i am too tired to wake up early and feel like getting up, can so easily slip back to sleep. It doesn't sound like the stuff most of you experience, re sleep

jom277 profile image
jom277 in reply to durga

I too can sleep for England and it takes 4 alarms to wake me up each day. I can also sleep one to two hours each day and am still tired but I never get that hung over experience with having too much sleep.

I am currently in a flare and the fatigue and sleep are even worse. I am sleeping 3 to 4 hours during the day and my daughter is having to virtually drag me out of.bed to eat.

awatson profile image
awatson

I am a great believer in alt therp's but must say like our med's just takes edge of. The best one I use is an alpha stim check this out: themicrocurrentsite.co.uk Other than this I saw a Chinese herbalist who did acupuncture and massage therapy, have felt better since then, had it 2 weeks ago. Was brill.Had acupuncture at pain clinic but was not quite as good. Also helps manage the pain is Bowen check out this link: bowennow.co.uk/BowenNow/Home. Hope you find some relief in one or a mix of these.

summerlite profile image
summerlite

Hello again! I've read the answers to your question and it just goes to prove how different we all are. We seem to have a pick'n'mix of symptoms out of the fibro bag! I'm sorry the accupuncture wasn't for you, I can totally understand if you're too sensitive for the needles. I've not been on this forum for too long but I've taken a lot from the wonderful support from it's members. It's sort of given me a release which has helped me emotionally and as a result I feel more confident in the way I'm tackling the whole fibro thing. If I do come across anything else that works for me, I will post it as it may help someone else in their search for answers! S xxx

jom277 profile image
jom277

I have Thai yoga massage, with some myofascial release therapy once a fortnight. Which I find works for me. Have tried Pilates, acupuncture, that haven't worked.

I have hypermobility and I watch my daughter and worry as she is a lot like I was as a child. Hopefully to a lesser degree as she cannot do the splits etc, luckily.

linlit profile image
linlit

i went to tia chi for people with disabilites i found it really good and still do it everyday and it is very relaxing. i also had accupuncture by 2 differnt people the first one i didnt like the man doing it so only had 3 sessions then my pain dr took over and she was wonderful and knew exactly were to put neddles. she dosent do it privetly if she did i would pay to have it done

durga profile image
durga in reply to linlit

thanks linlit, nice to have some positive feedback

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