I've reposted Bracept's recent answer (posted yesterday) to a question in June (hope this isn't against the rules!), as I felt that it may not get any air-time that far back. My response will be below - it's a bit long-winded, but, I hope, relevant ...
Maybe you won't like me posting in this thread (as I am a physio and you all don't seem to like us very much) but I hope I can offer a different perspective. From a therapist's and researcher's point of view I have battled to understand FMS throughout my career. I think a lot of the confusion comes from a poor understanding by many medical practitioners and lack of good evidence to clearly define using a bio-psychosocial model what exactly 'it' is. Yes current evidence defines FMS as a permenant condition however I would challenge this from 2 stand points. Firstly longitudinal studies for the evidence to explain the physical and neurological causes of pain associated with FMS are limited therefore we cannot truly know that symptoms have to be permenant. Secondly maybe symptoms have been defined as being permenant because we are not educated enough to have found the appropriate management strategy as yet.
This does not mean I believe it is or isn't a permenant conditions but to say that we really don't know and it is important to challenge the status quo in pursuit of a more effective treatment of FMS.
I think two of the statements above are excellent by LindseyMid and kraftyk8 basically focusing on the importance of the right lifestyle and medical management willl limit the level of disability caused by the symptoms of FMS.
One of the most interesting papers I read recently researched functional MRI imaging showing differences of those who had a diagnosis of FMS. For me this goes along way to explain FMS as a neural condition affecting the central nervous system, which for me is positive as there is strong evidence regarding neuroplasticity and the capacity for adaptation and change of this system with the right external stimulus. I can provide links if anyone is interested.
On behaved my profession regarding my unknown colleagues who have been cast with the title "physioterrorists" I would like to apologise for inadequacies in care that my have resulted in this title. I would like to express that we always try to work in the best interests of our patients and sometimes it can be a stressful job and we don't always get thing right.
I suppose my main focus of this post is to encourage you to educate yourself as much as possible, not only through these support networks but also by reading and researching the evidence available. I have treated hundreds of patients with FMS overs the last 8 years and thousands of patients with many different chronic conditions and one thing I can say for certain is year by year are skills and ability to effectively treat these conditions improves.
I look forward to hearing your replies and wish you all the best in improving day by day!
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