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Fibromyalgia Action UK
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Sleep apnea - Has anyone been referred to a Sleep Clinic?

Hi, I read that if you have sleep apnea then this will make FM/CFS worse, so it is important that our sleep levels are monitored (for Delta sleep) too. I'd be interested if anyone has experience of this as I'd like to ask my GP to refer me. Thanks

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Hello Reflections, I am sorry you are having sleep problems. I sympathise as I am a terrible sleeper, only snatching a few hours every night and feeling exhausted all the time. Doesn't help our Fibro and in my case CFS/ME too.

If you are interested in attending a Sleep Clinic, have a word with your GP to see if they can refer you. I am posting a link about sleep clinics generally, I hope this is helpful to you.

healthcentre.org.uk/sleep-d...

Please let us know what your GP thinks about this as it might be helpful to others in a similar position and it's always good to know about these things.

I hope you get on well.

(((hug))) xxx

Libs

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Hi Libs, thank you for the link, that's very helpful.

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My pleasure Reflections, happy to help any time xxxx :)

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Dear Reflections,

As you have mentioned it has been reported that people living with Fibromyalgia /CFS do not experience the Delta sleep (restorative part of sleep). I would be very interested to hear results from the sleep clinic (if you get a referral) as sleep apnoea disturbs sleep patterns.

Here is some information about the tests that may be performed at a sleep clinic

nhs.uk/Conditions/Sleep-apn...

I have personally never had any experience of sleep clinics but maybe other members can provide you with their experiences that may be of help.

I will keep on reading with interest

Best Wishes

Emma

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Thank you for the link Emma.

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No problem at all, I will be very interested to hear how you get on.

All the best

Emma

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I had an appointment at the sleep apnea clinic last Monday,when I spoke to my Dr initially I said that I didn't want to sleep over night at the hospital and he said it was no problem as it can be done at home.

When I had my appointment they attached a smallish monitor to my chest with a lead that ran down my arm and attached to a rubber thing which was on my finger,there was also a tube that was attached with micro pore either side of my face which went to each nostril.

I had to sleep with this on over night and I could remove it myself in the morning and return to the hospital which wasn't a problem for me as I worked there.

They will get in touch with me with the results which will record how many times I stop breathing when asleep.

I hope this gives you some idea on what happens...PB xx

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That's what I thought at first sleeping in a laboratory, I will look forward to the results, thank you.

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I did a home sleep study in November which confirmed I had Moderate Apnoea and I'm now on CPAP and its getting easily by the day...I'm still feeling a bit tired in the day but its improved

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That's good that there has been an improvement. Can you tell me what CPAP stands for please?

Thanks.

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Hi Reflections,

CPAP is Continuous positive airway pressure.

I used to set up CPAP but on a ward level post sleep studies.

It basically means there is a continuous air pressure delivered by a CPAP machine that delivers air to your lungs when you are inhaling and exhaling.

It helps to keep the airway open, free from obstruction too thus helping Sleep Apnoea.

I hope this helps

Emma

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continuous positive air pressure

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Hi, had a sleep study a few years ago, my ex use to wake me up 2/3 times a night so Dr sent me for a sleep study, they told me i had not got any problems with my sleep pattern, oh well, good luck with yours, single now so i don't get woke up when i stop breathing, lol

Druss

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I have Sleep Apnea.It is one of the causes of Fibro as you never achieve deep sleep so your body cannot function properly. I use a a sleep mahcine which I had from Hospital free of charge (they cost about£500 privately. I wear a mask connected to the machine which measures your sleep hours. My average is now 6 hours of deep sleep which has helped me cope with Fibro so much better. I still take painkillers have fibro fog, cannot remember things , have to look at calendar to see what day it is but I am much improved.Have had the machine for 3 years now.

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Hello, so good to hear that this improved things for you. Did it make a big difference to fatigue?

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