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Fibromyalgia Action UK

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Hello everyone!

summerlite profile image
11 Replies

So good to find a 'live' fibro site! I'm a 46yr old female, diagnosed with fibro 2yrs ago but suffering with it for at least 6yrs. To say that this 'thing in my body', as I refer to it, has had an affect on my life is THE understatement of the last century! I have had to give up my teaching post, give up my beloved sport and give up any social activity that lasts longer than an hour. My family life has suffered greatly too, thankgoodness that children grow up. I have three, all of whom live at home and as a single mother, they take up all my energy. However, they do provide me with endless pleasure and constant mental stimulation! I have found out so much about myself during this time of change. I wish I could alter certain aspects of my character to make things easier for myself, but it's a case of go with the flow and do what I can today and hope that tomorrow it will have disappeared!!!!

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summerlite profile image
summerlite
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11 Replies
Akasha72 profile image
Akasha72

hi and welcome to the forum. Hopefully you find lots of information and support here

Akasha x

Hi Summerlite and welcome, this site is very good for support and information i have found and i hope it can provide you with some comfort.

It is an awful illness but one that can be lived with providing you have an enormous sense of humour and can laugh at yourself but the hardest is accepting and grieving for your old life.

Hope today is a good day xxxx

irisjoy profile image
irisjoy

hi Summerlite

you will find lots of understanding and support on this site

please feel free to message me if you have any problems you don't want to put on main site

i look forward to reading future blogs

take care x

Mdaisy profile image
Mdaisy

Welcome Summerlite,

I hope you find the forum helpful with many good threads about all different subjects.

Please would you mind as some point reading the guidelines to be aware of them and if there is anything you would like to know , please let us know.

fibroaction.healthunlocked....

fibroaction.healthunlocked....

Meanwhile , grab a cuppa, enjoy getting to know people and chatting away to the lovely members and I hope to talk to you soon !

Best Wishes

Emma

Hello and welcome to our lovely forum Summerlite, you are most welcome here!

Take a look around our Questions, Blogs and Tags, there is a wealth of information there, advice, support, personal experiences and friendship too! Please read our FibroAction Guidelines, you will find these under Blogs at the top, please select FibroAction Blogs and then scroll down. We ask all our new members to read these, many thanks.

If you have any worries or concerns, please do not hesitate to ask us, we are always only too happy to help. We all understand, we are all in the same boat here.

Going with the flow is a great philosophy and a positive way to live with Fibromyalgia. Having Fibro does largely impact on our lives but remaining positive, learning as much as we can about the condition and ensuring we get sufficient pain relief and appropriate medications will help us to improve our general well being and also our quality of life.

I hope you enjoy your time at FibroAction! :)

(((hug))) xxx

Libs

Hell and welcome to your home from home you cant choose your realatives and we are a huge family here lol some like me slightly nutty some in so much pain they just need soft cyber hugs and comforting words some who on a good day will post fun items but hey you going to love it here petal

Welcome to our family Summerlite.

Have fun on the forum and we will do our best to cheer you up or just listen if you want a rant or a shoulder to cry on.

Piggy hugs xxx

Daisy101 profile image
Daisy101

Hiya, I'm fairly new too, nice to 'meet' you and look forward to sharing the range of topics and things we all experience on a daily basis.

Hugs Daisy x x

summerlite profile image
summerlite in reply to Daisy101

Good to hear from you Daisy. I will be a regular visitor to the forum so please stay in touch. Maybe by supporting each other, we'll make a difference and get through it together. By the way, I've got to tell you that 'my glass' is of the half full type. Even though life has attempted to totally drain it at times!!! Love your name too, as I'm a summer baby and love all things related to it. Hence my pen name-Summerlite!!!! xxx

summerlite profile image
summerlite

Thank you all for the warm welcome. It' amazing that so many of you are 'there' and ready to share. Thankyou!! I feel uplifted already! It's wonderful to be able to 'speak' to others without the effort of physically socialising or attempting to hold a long conversation without slurring! I'm just coming to the end of a particularly draining cycle( Christmas does it to me every time!!) and the mouth and brain have 'loose wiring' at the mo'. I will be a regular visitor to this forum, as I'm often in need of question answering, discussion and even a good old moan! I also hope that sharing my experience of life with fibro or 'the thing' as it's known at home, might just make someone else's life a little easier. S xxx

melodypond profile image
melodypond in reply to summerlite

Hello from me too. I am newly diagnosed and new to the forum as well, and have found it to a great place to get feelings out, find advice and vent! Only my hubby knows about my illness so far so it is great to come on here and 'talk' to people who understand and know what you are going through. And you can do it in your PJ's - always a bonus to find things that you can to do in your Pj's don't you think??!! I too refer to this illness in such similar terms as 'the thing' but none that I can post on here! x

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