Hello.: Hi i dont actually have fibro... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Hello.

Roxan profile image
13 Replies

Hi i dont actually have fibro its my husband so hope im ok being on here i just really needed to talk to people that understand or maybe just see that we are not alone. He has been ill for about 18 months now it just started as a pain in his leg now he is severe pain most of the time and it seems like no one believes him not even his doctors they basically accused him of seeking drugs the last contact we had with them last week. I went to the doctors last week and when i told him who my husband was he told me that my husband was very demanding on my time (how he drew this conclusion i have no idea at all) and there's and said he was sure my husband thought they had some mirical cure locked away that they would not give him and also suggested that it must be like having three children not two to look after! i have never been so upset in all my life. Sorry for the big moan but i just needed to get it out. We have been through so much since the onset of this illness as you will all understand but i just alwayes thought the doctor would be there but it seems like they have lost interest and just want us to go away.

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Roxan profile image
Roxan
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13 Replies
Extremelygrumpy profile image
Extremelygrumpy

hi, don't apologise for being here you may even get your husband on here when you reassure him he would be most welcome... Unfortunately lots of us on here have had problems with gps, myself included and had to try quite a few drs before I found the practice I am at now where there ate TWO good fibro gps..... If you feel your gp is not supportive , tell him or change gps , we know there isn't a miracle cure but we are entitled to pain relief and the best help we can get to get some of our life back

Hope this has helped slightly and look forward to seeing you and your husband on here

VG x

Hello and welcome to our lovely forum Roxan and Hubby, you are both most welcome here!

Take a look around our Questions, Blogs and Tags, there is a wealth of information there, advice, support, personal experiences and friendship too! Please read our FibroAction Guidelines, you will find these under Blogs at the top, please select FibroAction Blogs and then scroll down. We ask all our new members to read these, many thanks.

If you have any worries or concerns, please do not hesitate to ask us, we are always only too happy to help. We all understand, we are all in the same boat here.

I hope you enjoy your time at FibroAction! :)

Libs

Admin

Roxan profile image
Roxan

Thank you. Iv been trying to get my husband to join a group and i know he has looked on a few so i will show him this one tomorrow it has been good to see so many people with the same issues as we have it makes you realize your not going round the bend, i feel better already knowing i have people to talk to that get the situation because really we have no one well apart from each other. <3

in reply to Roxan

Take a look at our main site at FibroAction Roxan, there is a wealth of info there, here is the link to take you there, have a look around -

fibroaction.org/

There is a Support Group directory there as well, there might be a group near you which might help both your husband and yourself.

Anything you are not sure of, please just ask, we are always only too happy to try to help at any time. Both our Admin Team and Volunteer Team have Fibromyalgia too, so we all understand.

Libs :)

Roxan, have you considered asking your GP for a referral for your hubby, to a Rheumatologist for example. Hopefully this would lead to treatment and meds etc that would help him and also reassure you that he's getting the help etc that he needs.

It might be worth going along with your husband to see his GP, a bit of extra support can be a good help. Ask for a referral. Please let us know how you get on.

We are always here to help and support where we can, we care about all of our members.

Take care both of you.

(((hug))) xxx

Libs

hamble99b profile image
hamble99b

dreadful! [I counted to ten and cleaned it up before I replied]

is there another gp you could see? you won't get much help from him. Ignorance is no excuse for such behaviour.

welcome to you both and feel free to share.

sandra.

So sorry to hear that a GP would speak like that to or about someone!

As others have said, try get a referral or see if it would be possible for you to change GP.

Take care.

bbstport profile image
bbstport

it appears a lot of doctors have this attitude and maybe it is they do not fully understand fibro. i am lucky that my gp does understand. i agree try to get a referal to a reumatologist. i was referred to one and also to a pain management consultant. i have just finished an 8 week course at my local hospital which was a fibro management course and there was about 12 of us on the course and i found it very beneficial. i hope you get some sense from the gp and hugs to you both

belinda

Cat53 profile image
Cat53

I don't have fibro either, but I joined in the hope of learning more about this debilitating condition in the hope that it would make me a better Bowen therapist. Also my grandson has M.E. And some of the symptoms overlap as do the experiences with GPs and ATOS.

tulips123 profile image
tulips123

It makes me so angry to hear so much of this type of treatment. You are entitled to expect your gp to offer support and practical advice in dealing with chronic/debilitating illness like this. GPs cant be specialists in every condition which is why there is the referral system, but if a gp has no compassion for people in pain as well as their loved ones trying to help, what on earth made them think they could be a good gp/family doctor in the first place?

There are good gps out there, and I think you need to shop around. I wish you and your husband best of luck. That gp is in the wrong job! xx

durga profile image
durga

my GP isn't interested either, he acknowledges i have it, but wont categorically diagnose it. He hasn't referred me to a rumatologist, and i only get given co codomol for the pain, dispite my IBS - the other alternative is paracetamol, which do not touch me! So i live with it, it flares up at times then gets back to a managable state, but my body is always in pain, it's become my way of life. However my GP treats me better these days - not quite such the idiot he used to think me. (by the way he casually stated that he thought my son would die, many years ago). My son was an alcoholic. He wanted to return to uni to complete his degree, but cos he was still drinking gp wouldn't sigh him off. It was when i stated that he was more likely to hit the bottle if he wasn't at college keeping busy, and that he could help by letting him go back. He swivelled in his chair and casually said those words to a mother. It was totally out of order. Anyway he didn't die, got his degree eventually, and is a working sientist with a lovely daughter (single dad with custody) and is about to get married to a nice woman with a 7yr old child. So that GP was wrong in his opinion/prognosis. Sorry to go on, don't know wot came over me. I think pollution both air and water born and food additives have a lot to answer for. And GP's are falable!

Midori profile image
Midori

I think it's great of you to come here to find out about your husband's condition, many partners can't be bothered or think their partner is either lying or exaggerating.

GPs are a mixed bunch, many disbelieve bexause the condition is 'invisible', but you are entitled to ask for another opinion or a referral to a specialist, or even change your GP. If you are in a mixed practice, could your husband see a different doctor?

Of course there is always PALS, the patient liason people, who might be able to assist, also perhaps the Occupational Therapists, or even Social Services have an Adult section.

Please excuse my spelling, I have just had a catarract operation, so can only see out of one eye at present!

Cheers, midori

Roxan profile image
Roxan

Hi sorry its taken me so long to get back on and thank you to everyone for your advice. When i have more time i will fill you all in on what's been going on with the doctors. x

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