Its very difficult explainging to people how you feel when they have no idea what is going on. So how do you explain things to your family? How can you help them become more supportive without sounding like you are lazy? Its something I struggle with. I always try and see things from both sides and will never resent my family for there lack of understanding. But I need new ways to confront and ask for me support. I want to be able to spend more time with my grandchildren, see them more and have my family understand when I say I can't it really means I can't! I'm not being mean! This illness can be so evil at times. Though its the illness, not them that is the problem. I can't ever blame them.
Help and support very much needed. Thank you xxx