I have only just found this website and cant believe how thankful i am lol.
I am 23 (on Wednesday). I got diagnosed with Fibro 3 years ago.
It first stared started when i had a pain in my foot/toes and was convinced i had broken it! Went to a hospital in Manchester and they told me it was nothing to worry about. Moved home to Nuneaton and finally got another x ray, This confirmed that my metatarsal in my foot had crumbled.
This has left me in a lot of pain with each step. Over time i wanted to get all my aches sorted and was refered to a Rhumatologist. He diagnosed me with Osteoarthritis and Fibromyalgia. I have pain and swelling in my foot, ankle, knees, wrists, lower back problems, pain in my arms/elbows. I have had to stop working as a nursery nurse as my pain was a health and safety risk and getting up and working everyday for 9 hours was killing me! Also with fibro fog i was forgetting very important things!
With all of this has come depression, anxiety and severe anger issues. Saw the doctor yesterday and have been referred to a psychiatrist, Hoping this will help. * Fingers crossed*
On top of this my Partner has been registered partially Blind and Deaf recently. She also suffers with fatigue and severe depression. As you can imagine this is very difficult for both of us lol. Although she has always been deaf, She is loosing her vision and selfishly part of me is petrified that when i am physically unable to move and need the wheel chair that she isnt going to be able to help me or im not going to be able to help her!. Then what?!
Hello and welcome Princesskim, great to have you with us!
Thank you for your blog and for explaining your situation with us. HAPPY BIRTHDAY for Wednesday, I hope you have a really lovely day!
I am so sorry to hear about your partner's condition, that's really tough for both of you. It's natural you are going to worry about yourself as you aren't well either. It's perfectly understandable. Have you been told you will be unable to move and that you will need a wheelchair. If no-one has told you this, it won't necessarily happen. There is no guarantee with Fibro that you will end up in this situation. Your Fibro won't necessarily get worse, it may remain the same. Not everyone deteriorates to that degree.
I am sure visiting a Psychiatrist will help you, you will be able to get a lot of your concerns off your chest which is always cathartic.
Try to take one day at a time and not worry yourself too much as ultimately this won't do you any good at all and then you'll be more poorly.
I hope you feel better and more positive soon and that you feel more able to cope. Take care and please know that we are always here for each other to help and support where we can. A problem shared is a problem halved so they say! We are always here to listen, help and advise where we can. Remember we are all in the same boat here, we all understand.