Fibromyalgia Action UK

mystique

Hi All

I have only just joined, and have been diagnosed with fibromyalgia amongst other things!! I suffer really badly from insomnia (starting to think I must be a bat or something!) If any of you could give me some advice it would be greatly appreciated.

I am on amitriptyline and have just been given zopiclone to try and help, has anyone else been given this and how did you get on with it.

Thankyou,

21 Replies
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Hello Mystique,

Love your title! Welcome to the site, its fun friendly supportive and a good place to come if you need to let off steam!!!

I have severe fibromyalgia, chronic M.E., cervical spondylosis, ibs, arthiritus and a whole raft of other complaints!!

Most of the time I am upbeat, but I am opposite to you in that I sleep all of the time, bed time, day time I am usually up 3-4 hours and I become desperate to sleep, wish I could sleep myself slim!!!! Lol

Hugs

Sue x x x x

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Hiya thankyou ever so much, bless you, you seem really nice n I am sure you are lovely you must be to reply so soon and the same goes to diddle. I am hoping to get some sleep tonight if these tablets work! will hopefully chat to you soon Big hugs, mystique xxxx

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Hi and a very warm welcome to the site. well to start with you are not a bat i and most odf us end up in bed but dont sleep my usual time to go to bed is 11 pm and i am still awake at 1/2 am and guess what i get up yes up at 4 am 5 am if i am lucky which is not vry often so as you can see ou are not alone bless you keep reading the blogs and i am sure you will relate to nearly everything that we have all got so also welcome to the world of fibro , i hope to chat again soon love to you diddle and love the name too xxx

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Hi diddle love your name too, thankyou for replying n yup that about sums it up for me lol apart from the last two weeks when I have only had about 1-2 hrs sleep a night - hoping these tablets work tonight! will let you know if they work when im next on here - once again thankyou - big hugs, mystique xxxx

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Hi mystique,

I too would like to welcome you to this lovely network for fibro - I am new to it too and recently diagnosed with the dreaded fibro. I have spent years not being able to sleep at night (just a few hours) I was given Amtriptaline on Friday to take at bedtime along with tramadol and I have had 3 great nights sleep :)

I can hardly believe it myself, I just hope it continues!

Enjoy looking around and meeting everyone, hopefully we will speak again soon.

Fluffy hugs xx

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Hi Finlay,

Thankyou I'm glad its working for you, My doctor gave me Zopiclone to take along with the amitriptaline so I am hoping to get a good night sleep !! I hope you have lots more of good nights as it does make a difference. My memory is terrible at the moment. I even put my purse in the fridge the other day! mind you I have been told im as mad as a hatter lol so nothings changed much hehe xx

Look forward to speak again soon.

Take care,

loadsa hugs

mystique xxxx

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Hi to you mystique, welcome to our 'family' : D

Hope you find this site a help and supportive

hugs poppy xx

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hi i am the same as you i dont sleep xxx

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Hi I have just joined the site tonight,

Mystique I can relate to you, I am on both. I hope and pray it works for you the you can get some sleep for the both of us. :-)) I have severe Fibromyalgia, CF amongst many other tag alongs.

I am online most nights so feel is you need a fibro friend during the awake nites. xxx

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Hey Mystique, gentle hugs and welcome to our lovely community of Fibromites! I'd like to ask you to leave Mr Fibro at the door as you come in and take a pew - but we all know that evil S-O-G. (Son-Of-a-Gun < nearest to swearing I do on-line - but I do swear!), does just as he pleases!

I've been an insomniac 38+ years and have been a Fibro suffer about as long - but only diagnosed 7 yeast ago along with PTSD. I've tried Zopiclone in the past before diagnosis and Amitriptyline for pain amongst others but after a while my system wised up and got used to them - So these days my new best friend is Pregabalin. Though I now sleep better at night - like others here, I can easily sleep the day away at a drop of a hat!

I i hope you finally get a brilliant nights sleep from now on.

Love,

Carol xx

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Thankyou all soooo much - well I took all my meds last night along with the zoplicone - well think I will take the zoplicone when I actually get in bed as I felt like everything was moving lol was really dizzy n felt sick, but HOORAY it worked going to try again tonight but today I feel like a zombie! my body needs to get use to them , then will probably alternate or stop them to see how I react. My daughter who is 16 has been a great help - last night she had to help me upstairs n im not exactly the lightest person lol she sat with me n made sure I was ok - btw she says Hi to everyone and thanks you all to as it has really cheered me up now knowing I can be in contact with you all. luv n hugs to all xxxx

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Hi Mystique

I take amitriptaline and zopiclone, I just take the zopiclone twice a week as my doctor does't want me to get addicted to it.....I would take it in bed, as I took it before I went to bed when I first started to take it an I fell over, and still got the scars.....I will take it tonight as I haven't slept for over 3 nights so I need sleeeeep......take care xxxx

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Thanks my dooctor has given me diazapan again starting them tonight, think I will perhaps try what you do n take it if I have a few nights not sleeping - really hope you get some sleep n thankyou xxxx

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hi mystique, (sounds rather exotic!!) i think the insomnia is because us fibros have difficulty sleeping as we are never comfortable ,my fella says it is like trying to sleep with a floundering fish!(not the most romantic of comments i must say!!) HOWEVER if you do find yourself hanging upside down at dusk til dawn from the light fittings go to your local vet as i fear you may actually be a bat!!!!!!

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lol thanks, you made me laugh so much btw love your name xx Today I feel like a zombie so maybe I should called myself zombiebat or something!! think I rang my doctoe n she said she is going to put me back on diazapan as the zoplicone making me feel worse, think if I went to vet they wd probably shoot me lol mind u at least I would go out with a bang!! (jokes aside) hope we can speak again sometime xxxx

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i once said to a pain specialist that i was under , if i was a horse they would shoot me,he said no i doubt it the n.h.s wouldn't be able to afford the bullet!!!

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p.s diazapam used to make me sleep better but my old g.p would not let me have it long term

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Zopiclone used to space me out for a couple of days afterward, but I seem to be ok now, but thinking about it I don't need zopiclone to space me out...LOL just a few nights of insomnia will do the trick.......It took me about 6 weeks to get used to them.....but even though we all suffer fibro we are all diffrent ...I have diazapan to .....I get 14 at a time and they have to last me 3 month ....

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aha netta62 I will keep trying different methods n thanks to you to electricjaws xx I definately agree I am usually spaced out too LOL maybe need to get use to the zoplicone! will try diazapan tonight see how I get on - I dont really like taking them but need to do something to help me sleep even if its only for a couple of nights!! feeling like I have done 10 rounds in a boxing ring at the mo! think im gonna have a long hot soak in bath when my daughter gets home - I love her so much n she is a great help xx big gentle hugs to all xxxx

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it is hard going, i've had fibro,myo fascial pain and spondylosis,for 13 yrs now,i was at a really low ebb, and felt i was yet again feeling once step away from suicide, and strangely enough i found this wonderful place( this fibro chat place) by error really and i am so glad i did, to find people who know how i felt as opposed to people who were fit and healthy saying"i know how you feel" WHEN ,NO THEY DON'T!!!, I'm glad your daughter lights up your life, i don't have children, i have a hamster and she is so funny she brightens me up, and i live with my boyfriend , sometimes he brightens me up sometimes not!!, i'[m struggling at the mo but it is nice to come on here and talk to like minded people), i wish you could slither out your body like a snake when it sheds its skin and have a spare body free of fibro to climb into!! wouldn't that be nice

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ahhh that would be heaven just throw away the bad bits lol x mines my mind or lack of it! I was saying to someone how I always forget if someone says something - then I try to give a really intelligent answer n hope it sounds ok lol x lovely talking to you happy hugs xxxx

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