I have a posting on my facebook page see link fibromodem.wordpress.com/20... and although I really do agree with this info we simply would not be allowed to try and get ESA/DLA, we are not allowed to look after our selves, if I did these things (and I would like to when and if I could) I would feel guilty or a fraud and if the benefit office were to know then they would deem us fit to work, does this not mean that the system is setting us up for failure and only bad days are allowed, heaven forbid we try to assemble some quality of life. I have not yet had the dreaded brown envelope (thought I did ... it was the P60 phew) to hear about my incapacity to ESA medical but in a way (lord knows how we'd survive) if I was turned down I think I would feel freer, I know for a fact that it has been holding me back for a long time as I dont feel I'm allowed to use suitable exercise to maintain as much health as possible but still not be well enough to work, after all it would always be on my schedule as and when I am able, keeping to someone elses timetable is not an option with FM.
Damed if you do, damed if you dont.
Life is not black and white and FM needs understanding and support, more movement and access to simple things such as massage therapy, osteopath's, nutriitionist's and others, no doubt you can think of some. I would love to contribute to society and my family but how am I supposed to get off this merry-go-round if we are not allowed to succeed in a basic right to exercise.
I have depression and I've just started antidepressants, I feel this way not just because of FM but because I feel traped and not working is miserable and the isolation and loss of identity and hope of improving my situation is a lot more to do with why I feel so down.
So to the system I say - You give me every reason to fail, you give me a reason to stop trying, I want more I really do but allow me the freedom to be me, good days and bad.
When I started this blog this not where I thought it would go but i wonder how many of you this will strike a chord with.