What mean things have your doctors or healthcare service provider said to you? I was diagnosed with CFS/ME in 2001.
Recently I had a male GP tell me that he was reducing down my opioids and I "would just have to learn to live with the pain"! Excuse me? What?? I had also mentioned that due to nerve damage in my back getting worse and the numb patch gotten larger that the pain radiates down to my lower back and has been causing me (on a few occasions) to lose control of my bladder. I'm only 44 years old. To which he replied "That's not relevant". I was so upset and in tears for days. The whole 3 minute call was rushed. He spoke over me and didn't actually ask me anything. The callback had been in the book as I was due a GP review and had booked it 3 weeks previously. I thought he would at least ask me how I was doing. How wrong I was and I was reminded that this is what we all (invisible illness warriors) have to deal with day in and out with these people. That's my rant over. Gentle hugs to you all xxx
would contact the surgery ask to speak to someone who understands the condition, move forward that way.
my 1st rhummy laughed at me at every appointment had no clue to my issue, yet my gp said was text book ... the letters made no sense to gp either, so asked for a second opinion, that meant travelling out of area, it was gruelling painfully / exhausting so many bumpy roads. the gentleman knew what was wrong and we began, sadly am still suffering at least they tried and did not laugh!
There are some right twats out there masquerading as medical healthcare Practitioners. I think that we've all experienced this type of nonchalant and uncaring attitude. So sorry to hear of your experience and how it did affect you days after. One word for you - Karma. What goes around comes around.