I'm trying to understand what Fibromyalgia is and how it all works. I've spent 2 years ignoring the diagnosis (even though I tick every single box) and tried to sort out each individual problem I have.
It seems to me that every problem I've ever had is never 'forgotten'. With every new issue I have the pain seems to be 'remembered' even if the main problem has gone away. A few examples, I had COVID 2 years ago, I still get the chest pains everyday. I had RSI a year ago and still continue to get numb hands. I had an ear infection 3 months ago with severe head/ear pain, I STILL have this now but no infection. I have a lovely long list of other issues, but is this really how it works? Are the nerves constantly sending 'old' signals to my brain? I'm struggling to get my head around it. My GP said these pains may never go away, although I have just started Gabapentin, I pray it gives some relief!
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Adora12
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Sat here thinking of your words and I believe the brain has the ability to give you older signals it’s like all memory’s ones that make you happy really laugh and one’s that make you cringe or something you hear a song you can’t get out your mind even a word my word recently was a name Teresa said in a Mexican accent why I don’t know 🤷♀️ so yes are neurological pathways in are brains have the ability to remind us that something made us hurt or laugh or cry when we loses a loved one we feel that are hearts are breaking with the pain of losing someone. So in respect to myself my brain I don’t underestimate it. I have heard the saying that we only use ten percent of our brain so that leaves 90% that we think we do not use but I believe we do we just don’t know it and that could be in one of the forms you described our brains basically have idol thumbs so starts saying hi I am here we don’t listen so it says right ok stabling pain I am here I know this sounds strange but I do believe my pathways in my brain need me to listen drown out the thoughts of others telling me if you have this or that you should feel like this some would say crazy way to think but I don’t think it’s crazy we used our brains in side our mothers building the blocks of who we were going to be male or female hair colour eye colour arms legs network of neurological pathways we could read them all we understood the map of this but we have now forgotten some of this as we try to fit it to our society how far back can you remember you don’t remember the amazing bit of all our brains built ourselves our body’s our mother’s supplying the genetics mixed with our fathers so their memory from their pathways must have come down to it has in the form of your hair it the the same as your mums or dad’s or you have the same expression or you even see your self wearing something that reminds you of a parent so yes we have the ability to remember old pain but we also have the ability to help our brains pathways to let the memory exist with out the pain. Talking with your brain focused on the older pain and try asking your brain can we move on I have noted this shall we make new memories with out the pain my not work may work we live inside ourselves and what works for one may not for others I hope this doesn’t sound to crazy 😜 I just one of these people who like being logical and thinking if I think that way the what is the other way reverse psychology on myself 😝
Hello, I do hope the new meds will give you some relief, we always say trial and error with medication. I really wish some days to wake up and Fibro had jogged off☹️☹️like you are saying having to endure other health issues as well it’s very hard. Some days I want to scream out loud and I come on the forum. and listening to this very big club reading peoples posts and daily struggles I tell myself I am not alone in all of this. My brain foggy to call it mildly and I seem to forget what I am doing next in a matter of seconds xx
Sorry you have this, Yes the nerves get sensitised and can get triggered by a older condition. It's a warning (often unnecessary).
As you go along though, you will eventually be able to sort out which pains are significant and which are just the nerves throwing a canary fit!
Give the Gabapentin up to 6 weeks till it starts to work properly, before you try anything else. Some folks don't allow enough time.
Look up The Spoon Theory on the Net, It will help you understand how your energy wanes during the day, and why you often don't have enough energy to socialise in the evenings.
If you have friends or significant others who don't understand, you will be able to demonstrate using the examples given,
I like to use the analogy of a Bank Account to illustrate it. You have a certain amount of credit in your account which you can spend daily. It is possible to overdraw occasionally, but take care; the Interest Rate is very high and it wants paying back fast!
Overdrawing too often will put you into a Flareup, or even trigger something else, so please take care.
Good questions about nerve signals etc. I can't answer those but there is something I use sometimes which you can do for yourself and is based on what is similar to nerve ends and deals quite well with memories and all the feeling around them. That technique is called EFT. Emotional Freedom Technique or what some people call Tapping. It was started by a guy called Gary Craig who wrote a book about it several years ago. He can be googled and several other people began teaching it online on video to make it available to everyone. (Much to his initial annoyance I think!)The demos have changed a bit but the basic premise is the same that you are tapping the ends of the acupuncture Meridians around hands, face and upper body while basically talking to your inner self, so it is mind and body connecting through those meridians. I haven't looked for ages but there are lots of youtubes etc out there to be explored. To start anyone off there is Jessica Ortner's one which is very simple to understand and she has simplified the technique from seventeen points to nine I think. She is rather sweet too. - She and her brother Nick spent some time in Africa teaching the original technique to refugee children from Ruanda who had been orphaned by the horrors there. This one of hers teaches the simplified technique. youtube.com/watch?v=pAclBdj.... I can recommend EFT to anyone trying to cope with the trauma and frustration of Fibro. Sitting alone in my little summerhouse I once had quite a massive emotional release tapping my feelings about never really having been able to work or have an effective career and was really surprised to find out how much that had mean't to me. - Not sure if the link will post properly - it didn't just now so hoping I have solved the problem with tapping on cookies! - If the video doesn't work just Google Jessica Ortner and Tapping Solution and take your pick.
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