Finally understanding Fibromyalgia - Fibromyalgia Acti...

Fibromyalgia Action UK

49,138 members60,468 posts

Finally understanding Fibromyalgia


Hi my name is Nanette. I have had osteoarthritis since i was 25 and was diagnosed with fibromyalgia in 2001. I also have djupytrens achilles tendonitis and ledderhose. I try to get on with daily life but the pain is insufferable probably because of lack of sleep like all of you. I didnt realise till i read everything on here that i am not a horrible person that its just the pain that gets me down. I like to bake and draw pictures but i am so exhausted i often just dont make the time and sometimes i think that life is just not worth living.

9 Replies

Hi here nice to meet you. Let me be the first to wish you a very warm welcome to our group :)

I know every one must get bored with me saying this. So apologies in advance 😂

But I see you've left your post unlocked to this community only. If you wish to lock your posts for privacy reasons this link will show you how.

If you need further help in navigating the forum pls just ask xx


Lolabaker in reply to Dizzytwo

Morning momo how are you today xxxx?

DizzytwoModerator in reply to Lolabaker

I'm so so. thank you for asking :) xx

Lolabaker in reply to Dizzytwo

Glad ur OK your always so helpful to others so I was checking in on you for a change 😘

Join the club hunny we are all in this battle together this forum has really helped me and there's a lovely lot of us on here so feel free to vent I was diagnosed in march after year of chronic pain ibs anxiety and insomnia do pace yourself and take each day as it comes unfortunately depression and anxiety come hand in hand with fibro myalgia it's because we're in pain constanley and don't sleep xxxxxx but don't give up xxx

Cumnock in reply to Lolabaker

I know. Like you i try my best. Its a nightmare some days.

Would love to enjoy a party and have a laugh

Lolabaker in reply to Cumnock

That sound awesome doesn't it just x

Welcome. I'm sure you will find lots of help and advice on this forum.....there's always someone who understands what you're going through.x

What a lovely picture.

Karen x

You may also like...