Aging of the brain : Hi I found this... - Fibromyalgia Acti...

Fibromyalgia Action UK
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Aging of the brain

Elay
Elay

Hi I found this out by accident. Fibro can cause premature aging of the brain, the grey matter which I find very alarming. My Doctor also said the medication I take does have have a bigger impact as I get older. 😣

55 Replies
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Is there anything else that Fibro wants to do to f*** up my life??!!!!

Elay
Elay
in reply to Janecc12

I know it's difficult but I also think it's important to keep pushing back and that's really hard to do especially when I'm knackered and sore. When I was diagnosed early 2000 I was told to look it up on the Internet, I know we have come a long way since then and now there is more awareness. One day at a time.

Painny
Painny
in reply to Janecc12

I agree, I have stopped eating for two days now as my brain even reacts to chewing food.

When I went outside this morning for a fresh air I had a fall due to dizziness. I can see and feel the premature ageing of my brain which in turn make me look over 100 despite being half of that age.

Oh man o man.....it’s tough 🤞🌻

Lou1054
Lou1054
in reply to Painny

Not eating can cause collapse

Painny
Painny
in reply to Lou1054

So true plus other reason make it worse 🌻

Mydexter
Mydexter
in reply to Painny

Oh painny do be careful not to fall, not eating probably made you light headed, I fell last year and broke my wrist and dislocated my shoulder, and I’m still not right, so please be careful 👍

Painny
Painny
in reply to Mydexter

Oh no , getting hurt by our own act is the worst things, and I am sorry that you still not right, if I am hungry I know the kind of reaction I get but the nausea this morning was more than that

Thank you for sharing the love 💕 I will be careful 🥰

Jamsiet
Jamsiet
in reply to Painny

Painny please have something to eat - even if it is soft food like soup or scrambled egg. Take care hun x

Painny
Painny
in reply to Jamsiet

Aww...thank you, when I eat my brain fog is over the roof and at the same time not eating is not a solution....it is a dichotomy of our brain xx

Soupy56
Soupy56
in reply to Janecc12

Here Here!

Hazel_Angelstar
Hazel_AngelstarAdministrator

Do you have a link to the evidence relating to this?

Painny
Painny
in reply to bantam12

I am the evidence and can vouch for what was said about the brain. I am a scientist but not medical science and can see how fibro ruins lives 🦋

desquinn
desquinnAdministrator
in reply to bantam12

that is the study I am aware of for this but it is a single study that is pilot, limited and using a small cohort.

The results are a discussion point until they are replicated, explained and understood. The age matching with such a small group of people could be an inadequate comparison.

Elay
Elay
in reply to bantam12

Hi that's the post I couldn't remember seeing. The post on line I think says neuroscience does state they compared the brains of people with and without Fibromyalgia and the grey matter shrinkage was more evident.

I can't remember where I saw it as it was months ago but when I check it on line it did say that. I was upset about it and if this is the case we should be told about it. I asked my doc about it and he did not say anything but gave me a yes nod however that's when he said as you get older the medication has a bigger impact.

I am 40 and have noticed slurred speech and my brain is slow to react. Im so scared I have kept it too myself.

Oscarlola
Oscarlola
in reply to purple145

Hi purple I'm 54 and I have noticed.my speech gets really delayed sometimes especially more so.when.im.tired and I lòose my concentration aswell which isnt good when I'm.dealing with money everyday but he ho I just joke about it as if I think about it to much it will really get me down try not to let it get you down try not to think about it as it will really affect your life and lifes to short to let it beat us take care big gentle hugs xx

Painny
Painny
in reply to Oscarlola

On question of money ! I went to a famous market in London for food. I gave the guy £20 and the food cost only £9.99. He gave a P back without realising it should have come with another £10 but I was such a dumb on the day because of the brain fog. The Turkish guy saw the vulnerability in my face and took advantage of it

My brain is is a mystery 🙈🦥I cry and laugh at the same time 😓😂

Oscarlola
Oscarlola
in reply to Painny

Yes I.no how you feel people can see it that your lot with it and unfortunately people take advantage but big hugs we are strong 🤛🤜

Bless you hunny can gp change the meds, there is so much attributed to fibro these days that all of em cant be right they find a few of us share a symptom and put it as a new symptom im sure head falling off will be on there one day lol all you can do to keep your brain healthy is eat the right foods n exercise it i do scrabble on line (word feud) writ3 doodle anything to stretch the mind its fun you make new friends at same time anything to stave off old age brain or otherwise good luck warm gentle hugs xxxxxxx

Yes it’s strange, but I sometimes get people frustrated when I pause for a while to answer them, it’s almost as though my brain needs time to register what they have said and then work out how to respond!

Oscarlola
Oscarlola
in reply to DarrellW

Yes I totally agree mr_zoonie that is me 😂

Yes that's me too, I get frustrated by it, and my husband gets frustrated too, waiting for me to answer him. I say to him it's just the Fibro Fog.

I say that to my wife to which she usually replies “you always say that”, I reply “ don’t you understand that it doesn’t go away?”

Sorry that's her response it's a shame she doesn't understand, at least my husband realises that it's here for the very long term, well forever. He is really quite understanding.

Scrumbler
Scrumbler
in reply to DarrellW

I’m like that too - but in my case it’s not caused by fibromyalgia.

If it helps, I recently had a brain MRI. The neurologist got very excited when he showed me the results. He said I had a total absence of any plaque and the brain of someone in their 20s. I’m much older than that and have fibromyalgia. Interestingly I meditate daily and have done for years and we discussed findings from latest research that demonstrates that Meditation can increase the grey matter and shrink the amygdala. I get forgetful/foggy brain when I have a flare up but I’ve grown used to it and accept it is my body’s way of telling me to rest and nurture myself😊😊

Scary! I have Fibro, and am experiencing forgetfulness lately. Up to now I have put it down to Fibrofog; but I am 72, It could be Alzheimers'.

Cheers, Midori

DarrellW
DarrellW
in reply to Midori

I really hope not 🙏💖

Midori
Midori
in reply to DarrellW

If it is, it is. No point worrying about it

I have had a good innings, done many things. As long as I leave my son well provided for after him spending his youth taking care of me.

Cheers, Midori

Hi Elay,

It’s so scary finding another thing to add to the fibromyalgia list bless you I have days dizziness I do eat regularly I cut back on my medication because I couldn’t function the Gabapentine made me unable to speak properly someone called me a drunk 🥴 I don’t drink.

Have a chat with your doctor see if there is any other medication without the side affects.

Bug hug Hel52

Welshcatlady
Welshcatlady
in reply to Hel52

Hi Hel52, I too am cutting down on the gabapentin, with a view of stopping taking it altogether. I have also stopped taking Co-codamol, except if I get a really bad flare up. I don't like what these drugs are doing to me. It is scary.

I’m on the last stage of getting completely meds free now only a couple of weeks to go and it’s done! It’s been a rocky road but it’s really been worth it! I feel so much more ME now, not a doped up zombie! It’s Duloxatine with me, I’ve had two of the shortest half life meds to get off (BAD karma!!!) and done it almost; never going back, sticking to my vitamins and CBD!

Well done Mr Zoonie, I have just over 3 weeks before I am hopefully free from Gabapentin, then next I will be tackling the Amitriptyline, although not immediately. I am feeling more like me again already.

It’s a revelation isn’t it? My GP is over the moon with my progress, he doesn’t like meds for Fibro either, people complain about their GP’s not wanting to prescribe them but they should listen and be educated properly!

Mr Zoonie, it definitely is! I have definitely felt much since coming of the Co-codamol, it was a struggle, but I'm so glad I persevered, and I've found that my pain is much the same as when I was taking the maximum dose. As for being educated there is so much literature on line these days. When I spoke to one of my GP's about coming off the Gabapentin, I told him that one of my symptoms was difficulty in peeing, and I explained that it is a noted side effect, he said he didn't know that. They can't be expected to know every side effect can they. He was very please to hear that I have all but knocked the co-codamol on the head.

Tramadol was the worst for me, it was a nightmare - the work of the devil that stuff 😂

Thankfully I have never taken it. 😊

Purpleprom
Purpleprom
in reply to DarrellW

Hi, please can you tell me what CBD you take as I really want to try this. Thanks

DarrellW
DarrellW
in reply to Purpleprom

I use a CBD tea that also contains Valerian and lemon balm and lemongrass made by Lucovital (it’s sometimes for sale in Superdrug) and a CBD oil Eden Aromata, it’s a 5% full spectrum enhanced absorption one; bear it in mind that it doesn’t work for everyone and it can take up to 4 weeks to get the full benefits. It’s possible that you also may need to increase the amount that you take. CBD does not remove the pain, it helps you more with the anxiety you get with pain, which helps to lower the pain levels, it makes it easier to cope!

Blossom23
Blossom23
in reply to DarrellW

Hello

My son swears by cbd oil . His dog had cancer he used cbd on her . The vet was surprised when he went back and it had shrunk . His other dog has cushions he's now trying the cbd on her . They are sister and twelve years old Labrador's . He idolises them. He also had cancer in the roof of his mouth which they had to cut away . He had a metal plate to go over the hole . They said it would grow part the way back but not fully then they would operate and fill the hole in. He has taken cbd for a long time as he also has fibromyalgia . Now the hole in the roof of his mouth has gone. I have tried it but it does nothing for me . He was dreading another operation as it was sore for a long time.

Hel52
Hel52
in reply to Welshcatlady

Hi Welshcatlady,

Well done it’s not easy I think we need to be on them to fully understand what they do but trying to function on these evil medications is absolutely impossible We are all individuals with differing levels of fibromyalgia my daughter has it at age 32 she’s just got diagnosed she’s taking everything thing her doctor is prescribing worry I can’t talk to her she’s as stubborn as hell

I have a few more gabapentine to ween off at night I to do one tablet over 4 weeks so I can lessen the side affects.

I only take paracetamol and ibuprofen BP medication plus others for other health issues I take supplements to help with the fibromyalgia.

Good luck big hugs Hel52 🤗

Welshcatlady
Welshcatlady
in reply to Hel52

I'm sorry to hear that your daughter has this evil disease, I can understand her need to take anything and everything that her GP gives her. I was exactly the same. I should be weaned off the Gabapentin in just over 3 weeks time, I am noticing improvements already. I still take 50mg of Amitriptyline at night, so will be tackling that next, but not immediately. I can't take Ibuprofen because I took diclofenac for year, blissfully unaware of the damage it was doing to my stomach. So it's Paracetamol for me and Co-codomol if the pain becomes unbearable. I would never have started on these meds if I had realised what effect they would have, but hindsight is a fine thing! Hope all goes well with you coming off the Gabapentin. Take care.

I agree with Hel52 - meds can slow and dampen all functions down which makes everything harder including processing information. I came off all meds 6 months ago and now I feel much more capable of coping with the fibro AND life’s issues. I’ve started Win Hof breathing and walking meditation helping me to sleep better and clear the overwhelming distractions in my mind that fibro symptoms cause.

Hel52
Hel52
in reply to Beachcomber53

Well done 👍

When I had my MRI they said I had white round spots which they see in older people. So yes I would agree with you.

Beam me up Scottie. Fibro is a collection of symptoms not a diagnosis. If you feel your brain may be involved, consult a neurologist.

desquinn
desquinnAdministrator
in reply to Scrumbler

There is a substantial amount of research that does link fibro to a CNS cause or at the very least a very substantial component in how it operates.

I am wondering what you are trying to convey with "Fibro is a collection of symptoms not a diagnosis."?

Scrumbler
Scrumbler
in reply to desquinn

I think that several members have conveyed the same thought on various occasions. Whilst no one would deny that Fibromyalgia does indeed exist and is diagnosed as a condition in its own right by many doctors, there is an emerging hypothesis that extensive investigations will often uncover other conditions which have been missed.

It is essential that patients presenting with Fibro symptoms should be thoroughly investigated.

desquinn
desquinnAdministrator
in reply to Scrumbler

differentials like thyroid, MS, arthritis et al should be ruled out just like any medical investigation for any condition. But there is a distinct, discrete criteria that has evolved over time to identify the condition.

Theories exist that fibro, vulvodynia, IBS and other conditions may actually be conditions that have a common origin and present as pain/ nerve dysfunctions that will over time be better identified.

However, until we have theories that gather evidence and traction and become facts we are where we are and the existing evidence base is what we should work from. I know that there have been hypothesis's presented that have sought to establish other conditions as being the origin of fibro symptoms but unfortunately these have not yet made their way to being evidence based with adequate replication and peer review and still fall within the differential criteria.

Scrumbler
Scrumbler
in reply to desquinn

You make some very valid points Des.

I’m not so much thinking about other conditions which are alleged to be the origin of fibro - it would take years to find an evidence base for most of those hypotheses and, anyway, that subject will always be a bone of contention. I think concerns are emerging that other conditions are being missed even when a Fibro dx is justifiably present using current criteria.

I’m very interested to read of work taking place on a definitive blood test which rules fibro in rather than out. I’ve posted link below together with some others.

medicalnewstoday.com/articl...

nationalpainreport.com/fibr...

news-medical.net/health/Com...

webmd.com/fibromyalgia/guid...

Blossom23
Blossom23
in reply to Scrumbler

I wish some one would beam you up. You obviously haven't felt the pain of fibromyalgia. It was around in biblical times . Yes fibromyalgia has lots of different problems . It's easy to say see a neurologist but you can't always choose who you see. I find your item very rude nasty insulting. Maybe one day you may feel it.

Scrumbler
Scrumbler
in reply to Blossom23

I feel it every day.

YASMINTINA
YASMINTINAFMA UK Volunteer

Thanks for posting, I keep playing word games and scrabble online when Im resting with family to try keep the grey matter active, another symptom then to add to the Fibro list🤣

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