Opiods for Fibromyalgia

[Nonactive]

Hi all, just wanted 2 give my own opinion in the use of chronic opiods use for fibromyalgia...Due 2 tolerance or maybe a worsening of my conditions or maybe both i have 2 say that having been on oxycodone for 5 years i have had good pain relief from this drug but less so over last few months.Yesterday i have increased my dose from 10mg to15mg 4 x a day and all i can say is wow big improvement indeed.I hope this extra pain relief lasts for a decent amount of time..I believe that opiods are very useful 4 fibro pain and that what the experts say is for many people complete nonsense in that chronic longterm use of opiods for pain does not work...I hope this makes sense....

[ALKT]

prolonged use of opiods can result in your body needing higher doses for the same amount of pain relief at higher doses opiods depress our ability to breath this is why some doctors are reluctant to increase dosage . also from anecdotal evidence if you have regular short breaks from taking opiods they may be able to work longer at lower doses .

[Hazel_Angelstar Administrator FMA UK Staff]

Hi, glad that you are getting store relief however, research and evidence points to opioids generally not being beneficial for chronic pain including fibromyalgia. However, this does not mean that they do not work for some people

[Nonactive in reply to Hazel_Angelstar]

Hiya..yes i appeeciate i must be one of yhe lucky ones becaise the other fibro drugs ie lycra etc do not help at all except gove me huge side effects...I do not suffer any from opiods.....

[Hazel_Angelstar Administrator FMA UK Staff in reply to Nonactive]

That's it ... We are all different in how we react to meds. I'm on Lyrica with no problems other than weight gain at beginning and they make a huge difference to my life but opioids (other than tramadol) make me worse with side effects

[Nonactive in reply to Hazel_Angelstar]

Yes its crazy isn't it..

[Midori]

I have been on CoDydramol since 2000, but I found they work best if I severely limit my intake, so, I take Ibuprofen for everyday pain, and hoard my CoDydramol for when I am desperate.

I have just noticed the date on my box of CoDy, it is out of date, so time to ask the doc for some in date ones!

Cheers, Midori

[Nonactive in reply to Midori]

Yes indeed..Actually i started on codydramol some 25 years ago and have climbed the analgesic ladder many steps since those...Many Thanks..

[Nonactive]

We sound very much the same Mydexter..Thx 4 the reply....

[Nonactive]

What opioids are you taking longterm Mydexter if you are happy 2 disclose this.Thankyou..

[Nonactive]

Yes ok thx very familiar with that med took it for 9 years...thx....

[Nonactive]

Not at all...I just found it no longer gave me enough relief...

[Nonactive]

Hiya..yes oramorph for a few years then GP stepped it up to oxycontin/oxycodone..which is a bit stronger than morphine...Been on this for 5 years now..Not a lot of further options for the future so hoping this continues 2 b good but had 2 increase dose as of thisTues...This med is excellent 4 me...

[Nonactive]

👌🏻👍

[Hidden]

Tramadol is my life line! No matter what anybody says, for me tramadol keeps me “going”

[Hidden in reply to Hidden]

Yeah people will say negative things but u no what Hun if it helps u good luck to u I couldn't cope with out co codamol it's either take them and move or be bed bound and a total mental mess x

[Nonactive in reply to Hidden]

Totally with you on that hun...x

[Hidden]

Co codamol is the only thing that helps my pain takes edge off x

[Nonactive in reply to Hidden]

Is that the 30/500 Lolbaker?

[Hidden in reply to Nonactive]

Yes it is I honestly am so happy for people that go the CBD route and natural route but it's impossible for me I'm to mentally messed up for that approach I'm being honest x

[Nonactive in reply to Hidden]

And there lucky the Cbd route works 4 them also..Fairplay 2 u..

[Hidden]

I ran out of co codamol for 5 days and the second day I was bed bound x

[Nonactive in reply to Hidden]

Understood yes its hell...

[Hidden in reply to Nonactive]

X🙏