Dear those who are ongoing tests, in ... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Dear those who are ongoing tests, in middle of a diagnosis or feel something isn't right.... Don't give up.My timeline of events...14 years!

4 Replies

(Birthday is 24th may 1994 )

Some of these has not being confirmed to being related to fibromyalgia however I've listed all the symptoms or reasons for seeing the doctors that could have been part of the fibromyalgia diagnosis / early signs of it.

At age 11 ♡ 1 May 2006 - Gait abnormality

Age 13 ♡ 2007 - [D]In-toeing

2007 - 'Growing pains' (I fail to accept this as the pain was constant and severe in most of my cases, I remember how they felt and still get pains like this!)

Age 15 ♡ 2009 - Myofascial pain syndrome (!!!!)

Age 17♡ 10 Apr 2012 - Knee pain

Age 19 ♡ 30 Jun 2014 - Knee pain

Age 20♡ 11 Apr 2016 - Knee pain

18 Oct 2016 - Knee pain

Age 21 ♡ 3 Mar 2017 - Malaise

7 Sep 2017 - Knee pain

Age 23 ♡ 2 Oct 2018 - Flank pain

12 Oct 2018 - Low back pain

23 Nov 2018 - Low back pain

Age 24♡ 2 May 2019 - Chronic low back pain

28 May 2019 - [D]Abdominal pain

9 May 2019 - Abdominal pain

3 Aug 2019 - Low back pain

4 Sep 2019 - Hip pain

10 Sep 2019 - Low back pain

Age 25♡ 9 Jan 2020 - Backache

17 Apr 2020 - Fibromyalgia

14? Years of these pains and I'm still undergoing tests to gain more answers. Just don't give up badgering your health care team / doctors if you feel that something's not right. Have faith in yourself that you know your body and know what's normal. Keep fighting and be strong 💜

I hope this is inspiration to some of you that you are not a burden and you are not being stupid or making it up. It's taken me 14 years to finally get an answer and would break my heart for anyone else to go through what I did.

4 Replies
acuratalo profile image
acuratalo

Its good to finally get a diagnosis. Took me 20 years. It doesn't help with all the pain but your mindset is better knowing someone finally believes you. On top of fibromyalgia I have M.E. I got sick of hearing ppl say I'm tired too. I felt like a loser. Right now I'm sitting on the couch wishing I could do my dishes. Thing I have learned is I don't have to beat myself up anymore if I can't. Glad you got your diagnosis, sorry it's not curable. Good luck and good fortune to you in your future. Stay safe

Amanda

Julesubu profile image
Julesubu in reply to acuratalo

Think that’s the biggest challenge, accepting that you can’t do everything or even anything some days.

I work 22.5 hrs now and this wipes me out, Sunday’s are often my most productive day.

Just took long time to realise world wouldn’t end if washing or dishes not done.

in reply to Julesubu

Yeah , I've not accepted this yet and always "beat myself up" when I can't do a particular thing though I am learning that it's okay. My hubs helps out more now which is great.

(I'm very independent and hate asking for help)

I've just gone from 40 hours a week to 30 hours, but I only work 7.30 hours on monday and Tuesday , Thursday and Friday. I have an office job but it still wipes me out by Wednesday as I have a lot of thinking to do and a lot of fast typing, remembering where to find stuff and I travel in on the bus where I have a 10 minute walk to bus stop and back home.

I can understand why it's taken so long to realise that though.

I hope you are well and safe

Theres lots of articles to do with Myofasccial Pain and Fibromyalgia being related x

I think my mps developed into fibro as it was never looked into apart from that 1 time

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