SENSITIVE HEARING!: Hi! Does any... - Fibromyalgia Acti...

Fibromyalgia Action UK

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SENSITIVE HEARING!

DXBW574 profile image
13 Replies

Hi!

Does any fellow Fibromyalgia sufferers have sensitive hearing, to the extent of hearing high pitch electronic sounds which hurts and makes you desperately want to get away from?.

Regards

DXBW574

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DXBW574 profile image
DXBW574
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13 Replies
Julia10 profile image
Julia10

Hi,

I am noise sensitive but not to that extent, must be so hard to cope with, sorry you have to go through that

A little yeah! Also some sounds really irritate me more than they used to. And every now and then I get a ringing in my ears almost like partial hearing loss then it goes. I believe that’s yet another symptom 🙈x

Gooddaysagain profile image
Gooddaysagain

FM affects all our nerve endings. The inflammation that is both a cause and an effect of FM, combined with stress, irritates the nerves that carry vibrations from your ears to your brain (at least, that's how I think our hearing works...) causing the nerve endings that process the sound to make a few mistakes. I see Tinnitus, those annoying sounds you're hearing, as one of the signs I need to slow down and find my inner sanctuary. Rest, and reducing the "stuff" that causes me stress, is the best way to deal with this.

I listen to self-hypnosis CDs, which help relax me and which give me something to focus on that isn't the noise inside my head.

I hope you find your own way of reducing yours.

Soothing hugs, dee x

P.S. Make sure you tell your GP, tho'..... just in case......

P.P.S. If the noises don't follow you from room to room, they're not inside your head.... tee hee!

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee in reply to Gooddaysagain

inflammation is not part of fibro as it stands at the moment. Possible neuroinflammation but ESR and CRP tests are used to rule out inflammatory conditions.

Rest and reducing the stress etc is really pacing yourself and definitely the right thing to do both physically and mentally.

Gooddaysagain profile image
Gooddaysagain in reply to desquinn

Thank you for your response. I respect what you wrote as correct if you assumed a simple/single meaning in my use of the term 'inflammation'.

There appears to be a broadening understanding about how and where our bodies become 'inflamed' in response to the stressors of both actual pain, and 'threatened' pain.

My understanding is that latest research is looking at a-typical inflammatory responses to stress at the myofascial interfaces, inside cellular mitochondria and within both the Central and Autonomous Nervous Systems, e.g. as in 'inflammatory cytokines'.

I will pull together the several references I have found for this on research from 2010 to 2019.

I was not referring to the 'typical' form of inflammatory markers found in other conditions and am in total agreement that FM is NOT classed as an inflammatory disease, as such.

(I may have got this all wrong. It's all a new language to me. Thank you for checking my understanding. I appreciate your doing that and look forward to your response.

Meanwhile, I'm going back to look for those references....)

In respect and friendship,

Dee

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee in reply to Gooddaysagain

Cytokines is in the area of neuroinflammation I believe and this is new research so still requires more validation.

lucysmokey profile image
lucysmokey

I've had tinnitus for years. It's worse than usual at the moment which is probably due to current flare up. Annoyingly it's loudest when I'm trying to get to sleep!!

I wonder if you are a teeth grinder like me?? This affects my ears and jaws.I do get hissing and excessive dry ears but that is sjorgrens,maybe get the test for that

Lou1054 profile image
Lou1054

Yes, it drives me bonkers especially low level noise x

Sky-dancer profile image
Sky-dancer

I have had tinnitus on and off since a car accident 23 years ago. And yes my hearing is sensitive, I can't stand some people's voices and seem to hear high pitched sounds more than other people. Cat scarers hurt my ears too..

rosewine profile image
rosewine

Horrible isn't it. I can't stand the noise of coffee machines being operated as it seems like a drill in my head. Sharp noises are the same. I also have tinnitus which makes things worse.cYou have my sympathy.x

Frogge profile image
Frogge

I have the same thing and have had it since I was very young. There was one store we always walked into and the high-pitched electronic sound was awful! But no one else seemed to be able to hear it. When we left the store, the sound stopped. There are a few other places it always happens, too. Used to give me terrible headaches afterward.

Tabby-Cat profile image
Tabby-Cat

A heightened sensitivity to sound is called Hyperacusis. I suffered Sudden Sensorineural Hearing Loss in my left ear a few years ago, when I went from perfect hearing to total hearing loss in my left ear in the space of about 5 seconds. Only having one hearing ear is very disabling, although most people's reaction is "but you've still got the other ear so it's not a problem". My response to that is "If I only had one leg would you expect me to walk normally?" I now have an implant in my head which is some help, but I have non-stop tinnitus in my deaf ear and am now very sensitive to certain sounds in my hearing ear. The medics don't know whether my hearing loss is associated with the FM or whether I'm just lucky enough to have both.

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