fibromyalgia

Been like this for the past 2 weeks where I sleep for about 12 hours then I’m awake for 30+ hours in agony all the time. Literally no medication works for me at all apart from cannibas. Recently started fentanyl patches at 25 micro grams every 3 days + some sort of oral morphine yet still no relief from pain. Previous medications I’ve been on like pregabalin, tramadol, amitriptyline (brutal) , duloxotine the list goes on. If anyone is on a medicine that I haven’t mentioned and is working for them plz let me know as I’m willing to try anything at this point would be truly grateful for your help. I’m 22 and only been suffering from fibro for 2 years and it’s literally ruined my life. I played football and ice hockey since the age of 8 but had to give it up because the pain was too much and a mean I can take pain I’ve had my fair share of injuries but nothing come close to this. Also lost my job November 2018 and been unemployed since. So aye that’s my experience with fibromyalgia so far.

Also I just want to shout out to all you warriors that suffer from this sh*t I love yous all.

# F@*k fibromyalgia

[Painny]

It is not easy Jack, especially at such young age, I know a 20 year young lady who had to give up university and her part time job, the pain takes it’s toll, I am lucky if I get 2 hours of sleep in a week 😰

I get you totally, I have reached the point that I only do as much as I can and the rest ain’t bothered, don’t want money, don’t want travel, don’t want socialisation and ....

I don’t know about medicine as I am avoiding them and only used cbd oil a few times but this is not for me either, my brain reacts to anything I consume even food 😥

Wishing you a relatively pain free evening 🤞

[Hidden]

Hi

It's definitely not easy, Jack. I have many other conditions causing pain like I'm sure many of you have too . I have an hour or less sleep per night due to pain. It's usually no sleep,for a few days and then maybe an hour through exhaustion. I had to take ill health retirement in June 2018 which was the right decision but it took me a while to accept it but I know my boss was right, just took me a while to accept it. I went home to tears every day so it was definitely the right choice. Take care Lynne

[Ani7]

Hi lovely I had all those medication that you listed and you are right none of them are working at all. I had hospitalised for several weeks they also put extra pain killers in my back and several pain relief drips. However none of them works too. I haven’t been out at all just stuck in the house. As soon as I try to move I just scream with pain. I hade this for a year my children wants to go out with me, my daughter wants to go to holiday with me But she is aware how bad I am. Some time I just cry 😭 with this awful pain. I don’t know why there is no meds for that symptoms. I hope they should work that out.

[Hidden]

Wow,if you,'ve hit fentanyl that will take some beating..I wonder if you have been offered therapies to help? Sometimes meds alone are not enough...are you under a consultant?Ask about hydrotherapy you may have to travel for it but I have found it helps enormously

[bear4ble]

Jack, you could investigate Bowen Therapy. Also look at NCBI with DMSO as a possibility ( make up your own mind on that ). Suggest read up on Magnesium using Dr Sircus IMVA. Although you are young it could be worth trying a course of Solgar Male Multiple - a bit like a shotgun - but one never knows!